Day 41 Bertiebassetts return Journey

1 minute read time.

We are going into day 41 since Bert started his Chemo (it lasted 5 days) and his counts are beginning to creep up, albeit very slowly. he had another couple of units of blood last night so I am hoping to see an improvement today when I visit.

As far as I can gather as they keep changing things he now needs more cheme as it is about 6 weeks away before he goes for transplant. However he can't get his week at home until his counts go up more, then he has to have the chemo and then he has to wait for his counts to fall and come back up in time for this appointment. It is not possible. as it has taken 6 weeks for this lot and the counts are not up enough yet apparently it gets longer each time.  Oh and he still has a bone marrow aspiration to fit in before he goes to the Beatson         

Confused, you will be.  cos I am. The problems all seem to start when the consultant changes every 2 weeks the plan also changes. Last week I was told aspiration around day 38 now I have been told they can't do it until his counts are up, which is nonsense as they did the last time prior to confirming that he had relapsed

Love Teri

Anonymous
  • FormerMember
    FormerMember

    Oh dear what a drag Terri - it must be so frustrating for you both as the dates keep being cancelled and moved about. I don't know what else to say except we are all with you cheering Berts bloods to rise to the ocassion. Heres hoping he transfusions make the difference for him. Lots of love Jools xxxx

  • FormerMember
    FormerMember

    Terri,

    What a long journey this has been, tiring and confusing and not over yet!!!!

    I hope they can come up with a more workable or realistic plan for Bert soon.

    Debs xx

  • FormerMember
    FormerMember

    Hope everything gets back on track soon Teri keeping my fingers and toes crossed for you both.

    take care love Terri xxx