A week has passed since we got our news that Bert was not to have his Transplant and there was nothing further in the way of curative treatment to be had.
It feels like a month so much has happened. He has spoken to the Mac Nurse at the hospital who in turn referred him to the Hospice Team and they have been out and visited arranged for all sorts of aids to help us in the house, a commode (for later when we might need it) urine bottles in case he can't get to the toilet, a wheelchair so we can get him out. (I really need to learn to drive), a mattress that helps prevent bed sores, all sorts of stuff. The District Nurses have been in, The Podiatrist is coming as is the Physio. Also his Psychologist is coming tomorrow.
We have seen the GP and have been allocated 2 named Dr's who will take care of him so we have continuity of care and everyone is talking to each other and getting as much preventative care going on as possible.
Today he needed his first blood transfusion since getting the news his Hb dropped in 2 days from 11 to 8.4 , I did not realise it would all happen so quickly.
Working as a receptionist at the local GP's Surgery I am aware that all of these things that do happen, and of all the people involved, but it feels so strange when they are happening to you.
Bert does not wish to know the prognosis so it is hard at the moment with all of the people involved in his care. However, I had a copy of the letter sent by the Mac Nurse to everyone involved and it clearly states several times that he does not wish to know so I think that has put his mind at rest regarding someone slipping up and telling him.
We have been at the hospital for 10 hours and he is exhausted so it is off to sleep for us both
Goodnight
Love Teri
