We were on a much needed holiday when we got our first clue that all was not well. Bert had had Bronchitis all through our holiday and against his better judgement he went to see the Dr the day we were due to fly home. The Dr in Turkey was amazing done loads of tests and told us after only 45 mins we were told that his white cell count was really low at 1.2 and that we were to see a Dr on our arrival home. He was admitted on the 15th of September and we were given the diagnosis on the 18th the day after his 56th birthday. His count dropped rapidly to 0.1 in a couple of days but then stopped at that. The Dr had told us that his chemo would start the following week. However she changed her mind, and sent him home after 2 weeks of antibiotics, antifungals and antivirals, which was just as well as I developed Laryngitis and a chest infection. I was amazed that he never got any infection. We went to the out patient clinic 2 weeks later and were told he was stable to come back in 2 weeks. on our return we were told he had to be admitted on Mon 2nd Nov despite the fact that his blood was still stable and he was to be starten on Chemo on Tue 3rd. The 1st lot of chemo mad him look dreadful I was not expecting that. However, he did look a little better the next day although he was very breathless and had tracking up his arm where the chemo had been put in. But all of that turned out to be ok. Here we are on day 4 gutted to find out that his brothers are not match for Bone Marrow, that left him feeling very upset and down in the dumps. So we will see what tomorrow brings
Goodnight
FormerMember
Hi teri ( & Bert), finally this cycle as started after the delay, the waiting must have been a trial for you both, the treatment is bad enogh without all the "hoops" that you have to jump through to get it.
Sounds as though bert has settled in well to this cycle and its really good that its not 24hrs isn't it, and I hope that he continues to do well on it and that it doesn't come with any other side effects and this time he stays infection free.
Just to let you know, mum is at home, been there since Tues, has had 2 intrathecals of chemo as an outpatient and then has another 2 next week and then they test to see if its had any effect. Keep you fingers crossed for us pls.
hi terri so glad bert not on another 24hr chemo that must have made him feel a little better. i know what you mean about being told one thing and then another. dad finished his chemo last wk and was sent home yesterday to report back to hospital 3 times a wk as they dont think his neutraphills will drop too low this time, they then called him 2 hrs later saying they are 0.3 and he has to go back in, so his stuff had to be repacked and mum had to take him back in. not good as it was her birthday yesterday and we were having a bbq. oh well this chemo should be coming to an end soon for us all- bring on some normallity ! x
Hiya I don't even unpack Bert's suitcase anymore because of the number of times I have had him home only to take him back that night or the next day because of a high temp I am sure its 3 times. Today he has had a high temp and diarrhoea again chemo is making him feel pretty horrible this time but he is almost finished thank goodness, I never thought 6 months ago we would ever get to this stage of his treatment. thankfully we have.
High temp diarrhoea feeling sick its all so familiar now but that does not help Bert when he is the one going through it. Tonight he was very weepy and there is nothing I can do to make it all go away. It makes me feel so completely helpless. He had to go for a chest x-ray tonight also because of the temp
