I have not been on for a while as Bert is not great so I have been spending all my time time with him
I did manage to have lunch with Claire but it was brief as she had to go back to work. The Consultant does not think I have Arthritis which is good only Bursitis which is just as painful but he injected my hip and I should hopefully be pain free tomorrow. He took loads of blood and an x-ray and I will get the result in 6 weeks.
Bert was very agitated when I was out the Marie Curie nurse sat and talked to him for 6 hours trying to keep him calm but said he is very confused. It is good to have this validated as so far only me and the kids have seen it.
Sometimes I go along with whatever he says other times I tell him but it really is a judgement call and sometimes it backfires on me and he gets upset.
Mac nurse wanted to take him into Hospice for a few days to get a complete picture of how he is, but he won't go no matter how many time I tell him it is for respite he said he is not going in as he will die in there. Quite honestly I don't think they would get a picture of how he is anyway as he will either become more agitated and have more panic attacks or he will withdraw into himself.
He has developed double vision and they are worried about Leukaemia having spread to his brain we have the clinic on Thursday so hopefully we wil get some sort of indication then.
I suspect that if it has they will do nothing now anyway, but he can't read or watch TV which is upsetting him.
Marie Curie nurses still coming in 2 nights a week to let me sleep that makes a huge difference.
Hoping everyone is taking care of each other
Love Teri
