Any support appreciated!

1 minute read time.

This is my first time on one of these boards so hope I am doing it right?! After a heavy bleed in April of this year I was finally diagnosed with Stage 3a CC in May. My planning scan showed an enlarged kidney so I was admitted for a stent to be fitted. Unfortunately it went wrong and instead of coming out the same day, I ended up in hospital for 2.5 weeks! This delayed my treatment but finally started my 5.5 weeks of radio and chemo therapy in June. Reacted quite badly to both as my tumour was so low down. Spent many days in bed just too exhausted to move and in too much pain. Barely managed to drag myself out of bed to the car for the 1 hour journey for treatment. Finally finished this treatment so had a couple of "free" days before my last stage of treatment began. This had to be carried out at another specialist hospital again because of the location of my tumour. Unfortunately when inserting the rods for the bracytherapy a needle was broken inside of me so I was transferred via ambulance to another hospital. Despite 2.5 hours of searching they were unsuccessful at locating the needle and so it remains inside of me and I was transferred back to the original hospital to complete my treatment. Unbelievably when removing the rods a bleed was caused resulting in yet another urgent transfer to the other hospital where I remained for 4 days. They eventually put a stitch in and I was allowed home. Since returning home I have had recurring infections and am still suffering side effects from the treatments. As a result I was taken back to hospital for an examination under sedation. The result of this is that some of the tumour remains. I have now been told that my ony hope is to have a radical hysterectomy. However I am only eligible for this if my tumour has not spread any further. I have 2 children aged 3 and 7 and a wonderful, supportive husband who I can not bear to leave. I am waiting for an urgent scan and will basically know within 1 week whether I am going to die! I am absolutely terrified and would really appreciate hearing from anyone who has been through this and come out the other side.

Anonymous
  • FormerMember
    FormerMember

    OMG you have had the most awful time. I wish you all the luck in the world with your results.

    Take Care Love Kaz x

  • FormerMember
    FormerMember

    Hi! Kazza welcome onboard! You sound incredibly strong and courageous to have gone through all that already, and I am sure this will carry you through the waiting period. The chat room here is great if you are feeling particularly lonely or scared, as there are loads of people on there in the same place!

    Best wishes for next week and you future health,

    Big Hugs from Essex.

    Hopex

  • FormerMember
    FormerMember

    Have just had a call from my support nurse to say that the biopsy showed that it is dead tissue but that the surgeon is still concerned and wants to still do the urgent scan?! My head is all over the place now as he was so certain it was tumour and now it's not but he is still concerned! Don't know what to think, am hardly daring to hope that my luck has finally changed but surely this must be good news?!