Hi not written a blog here before
My jilly has been having a great couple of months we recently got her off her steriod the dreaded dex which is great shes been off about 2 mths now except her apetite has gone to nothing, but i,ve two things i,m worried about 1 is in the last two weeks she has started to have pian in her legs and lower back is finding it difficult to walk but its coping at the the moment obviously i,m worried it has spread, second is we have Take That tickets for the 1st of july i,m worried about taking her because the lighting and noise because of her brain tumuor and fear of more seizures but jill is adamant she wants i can,t tell her not to, no more than not to sit in the sunshine which she loves doing, also when ever we,re in company or with docs she says she fine which is really frustrating because when we,re on our own its a different story god bless her i suppose it her way of fighting and she is certainly doing that please adavise
Have no knowledge of Jilly's type of cancer but just wanted to welcome you to the site. Am sure others with the same type of cancer will write to you soon.
Am all for doing whatever you want to do if you feel you can.
Hope Jilly is enjoying the lovely weather and hope she is well enough for the Take That concert.
Common problem Andy, tell the docs etc u r fine then struggle at home. No solution to offer on that except to challenge her about it in front of docs. Or.... to say 'excuse me but don't you remember..' or 'didn't you say that you had..... problem?' They need to know so that they can offer help and/or advice. If you go to the concert, try the things we suggested in chat to see if they help. Good luck hun and take care of yourself and your beautiful Jilly x x
Hi, I had exactly the same with my husband. Everything was fine, everything was improving as far as Simon was concerned. But I learnt that as long as he was not harming anybody, it's best to let him to what he wanted. Simon was getting so frustrated that he was losing control over his life, I decided to become a facilitator rather than someone who was to tell him what to do or what's right for him.
I wish you and Jilly all the best. Enjoy the concert.
