Thoughts from the frontline - 70

3 minute read time.

I read T's blog last night and it reminded me that this whole cancer thing is much more difficult/traumatic for the carer. I know how well I'm coping and I know when I'm having a bad day. Luckily I don't have bad days or moments to often. The worse for me is the continuous worry that no matter how strong I am, how strong Team A is we are fighting a cancer that plays by it's own rules.

If I was in T's position I think I would have cracked by now. All you can do as a carer is to support and to nag. Yep, the nagging is important and I love T for it. She's the main one in my corner looking out for me. She makes sure I rest, makes sure I eat properly, makes sure I enjoy life. Sometimes I just know that she has put her life, her wants and her needs on the back burner as we go though these very risky first few years with this cancer.

Babe, this is a partnership, don't forget that T is important to me and it's important that you remember to look after yourself and don't be afraid to leave me sitting on  the sofa whilst you go out and have some normality without every day being a cancer day.

Right, got that off my chest :-)

Now where was I? Oh yes, the last time I blogged was about Friday night and, as explained, I had an early start to meet Mark over at the old offices so he could remove the structured cabling and touch up the paintwork. That done I raced back to meet T at the new studio where we had the first studio based family portrait session. Parents and there 30 something son. And he was a miserable sod! I'm allowed to say that as it was what his dad called him! He hated having his picture taken so this came out in very sullen looks. We did catch some of him smiling so his parents will have some great pics to send to his nan for xmas.

Shoot completed we went home and I curled up on the sofa for the afternoon and the evening. This bloody cold thing is getting to be a right pain...

Sunday was a fun day as there was another photoshoot but this time it was boudoir and featured T's cousin Kim. I wonder if she wants me to tell everyone on here? Too late now ;-)

Three hours later and numerous clothes changes later, including some close to naughty ones, and it was " a wrap" as they say in professional land. So we just said that we'd finished and we'd get her a slide show in about a week. A week? she complained, "I want them now!" No way Kim, post production is important even if just to remove spots and soften those skin tones.

The rest of the day was then me snuggles on the sofa then cooking the Sunday roast for early evening so that we could get our fix of Xfactor and IACGMOOH.

Lazy start on Monday morning as we were having a new tv aerial fitted so I spent the morning on the computer and making phone calls. Popped into the new office for an hour then back off home to spend the afternoon with my son Phil and better half Becca. A great chilled afternoon was had by all except for T who was still stuck all day at work. Now that reminds me about how I started this blog noting that this cancer thing is much harder for the carer...

Biggest hugs in the world to all you carers, especially you T, you make my life good.

Andrew xxxxxx

Anonymous
  • FormerMember
    FormerMember

    Hi Andrew,

    Its nice when others think of us carers, many a time I have left the house/hospital in tears thinking will he still be alive when I get back. It is fine for  family to tell you to go out and live "normally" I tried going shopping  one afternoon recently. and I arrived at the hospital to be refused entry to Bert's room as yher were about 5 Dr's and Nurses in there. he had spiked a temp and was quite unwell with him being neutropenic. I know that me being there would not have stopped this from happening but I would have been with him, when I eventually got into his room he did not know who I was and that was even more distressing for us both.

    So I have decided rightly or wrongly that I will stay with him as much as possible. Normality can wait.

    Love Teri

  • FormerMember
    FormerMember

    Good blog Andrew, I agree that we as patients have total control (well maybe not total but you know where I am coming from here!) over our 'illness' and treatment plan.  Our loved ones watch from the sidelines powerless really and that would totally kill me.......I don't know how they do it.  But hats off to you all.

    Love & Strength

    Debs xx

  • FormerMember
    FormerMember

    When my mother was terminal with breast cancer nearly thirty years ago we had two newsagents shops. We were well known in the local community and questions about her health were incessant. aside from the  24/7 nursing - no specialist nurse - just a district nurse wo came every four hours day and night to give her her morphine. I wanted to scream that she was dying in the most appalling of circumstances when asked but just had to say that she was OK etc. Because of my experiences I do try support my carers but I know that I don't do enough and certainly don't tell them enough. Cancer by its very nature turns you into a selfish bastard even if you don't mean to be. Carers are a vital part of a cancer team. We don't do enough to support them.

  • FormerMember
    FormerMember

    My boyfriend has been amazing to me throughout this ordeal. Not just as a carer, but with everything. When I'm feeling rubbish, I have him to go to. But when he's feeling rubbish, where does he go? He carries so much of the burden but without him, this ordeal would have been so much worse. I feel very, very lucky to have him.

    I've read blogs on here from 'carers' who's employers are giving them a hard time. It's terrible. Carers are totally underated and it's such a shame, because like the others say here, they are such a vital part of the team. Andrew, you sound like you have a really devoted person by your side.

    Monna x

  • FormerMember
    FormerMember

    My lovely hubby, Kev, has been a little star. He's been making all the meals for the family as well as getting up at 4.30am 3 or 4 times a week and working until 7.30pm 3 or 4 times a week. He owns a newsagents and it's long hours. People are commenting that he looks tired and that makes me feel awful. I wonder if he's feeling worse than me? He didn't even get a holiday this year, because of me. When we don't go on holiday, he doesn't take a break from the shop. I really don't know how I can thank him enough for being there for me and putting up with my constant trips to the loo at night, sleeping all day on the sofa or bed for a number of days during my chemo cycle and sometimes just beng a complete pain in the backside. Thanks Kev, I really hope that next year will be a better year.

    A big thank you to all you carers.......we love you!

    Angela xxxx