Thoughts from the frontline - 40

1 minute read time.

"Chop chop busy busy work work bang bang" was the line from an old (1985 ish) BT advert (watch it at http://www.youtube.com/watch?gl=GB&hl=en-GB&v=FU4PwKrrHOE ) and that is how I felt on Tuesday!

A day of work, sitting at the computer, designing away and all of a sudden it was lunchtime and we needed to quickly get something to eat before our first meeting with our Ian Rennie nurse.

She was good. No pressure to offload at the first session just a "getting to know each other" chat. I told her my story but missing out the sucking jelly through a straw skills and then T did the same. Hope we don't need it but it's great that they are there 24/7 if you need to call them about anything including at 2.30 in the morning when things get too much.

And then it was back to work. Wow, my brain is almost back to normal. It was only a couple of weeks ago that my brain was so twisted that I couldn't even read a page from a book. I even started to sort out the massive pile of paperwork that had grown over the past couple of months. I might even get round to sorting out my expenses for work!

T had made a great tea which we had snuggled up on the sofa together.

A busy normal day. And not once did I think of the upcoming camera down the throat next week or the next scan. Well maybe I did think about them but at least not all the time!!

Hugs to you all

Andrew xx

Anonymous
  • FormerMember
    FormerMember

    Oh I know that muddled brain feeling, like swimming in treacle - lol

    an you come and deal with my pile of paperwork too - it like my ironing has been on the "to do" list for weeks...and weeks... and weeks.

    Glad you had a normal day and fingers crossed for the movie of your insides.

    Love and Hugs

    Carol xx

  • FormerMember
    FormerMember

    Hi Andrew

    I'm 13 weeks post op and my brain is still muddled (perhaps it's the chemo??). I thought I had a hairdressing appointment today and an oncology appointment tomorrow. Something made me look at my hospital appointment card last night and I discovered that my appointment was actually today at 9am. Thank God I looked. Anyway, after the hospital appointment I made my way to the hairdressers for a 10am appointment only to find that it was for tomorrow. The old brain just isn't working to full capacity.

    I haven't had a camera down the throat, only the other end. I'm sure sedation is an option for an endoscopy, and my advice is, go for all the drugs they offer!! They work.

    Wishing you the best

    Angela xxxx

  • FormerMember
    FormerMember

    It really is amazing how when first diagnosed our brains go through this blank, mushy non focus thingy to being able to get back to some sort of normality no matter what that normality is.

    When Loggy had the trachi in he was coughing quite bad the day after it had just been changed so his surgeon told us to make our way to the ward on Saturday Morning and he'd have a look.  He took the centre tube out and placed a camera down into loggy's lungs to check all looked ok then he turned the eyepiece to Loggy and said "You want to have a  look, not many people can say they've seen their own lungs".  

  • Wow! It's amazing you are back at the coal-face! (or in my case - 'The chalk-face') Well done Andrew! But... walk... don't run...

    Mega-apologies for torturing you with the jelly-sucking episode! I really wasn't expecting you to suck the whole jelly, just slurp a little up the straw. Still, we did have a good day, eh?

    Best wishes,

    KateG

  • FormerMember
    FormerMember

    Kate,

    I LOVED the jelly at the Banstead Bash. I was proud to have been able to still do it after all these years. Act is now firmly back on the party circuit!

    A xx