I'm taking my mum for her oncology appointment tommorrow. We are going to discuss the next steps for mum. I writing this blog to get some advice from people. My fear is that me and mum will go in and come out and not know what just happened. I want a to make a list of questions to ask because if i dont i will regret not asking this not asking that. Is there any questions you know i should definetley ask ?
Roughly we know mum has Kidney cancer with mastasis, and surgery is not an option for her.
FormerMember
Hi,
You definitely have to take a list of questions and don't be frightened to ask the Dr to repeat what you said so that you can write it down. Maybe one of you can ask all the questions and the other take notes. I know it sounds a bit like taking notes a t a meeting but there is nothing worse than not remembering exactly what has been said. My husbands sister comes with us to all appointments now as we have experienced this and I was like you going in with my bit paper and pen. Wouldlike to know how it goes for your Mum.
There will be a million things going on in your mind, Its great that you thought 2 write down your questions, But I have found that you should take a third person (someone a little less connected 2 the situation) so that they can take notes on what is said. Believe me, no matter how much u r listening, there is sooo much you will miss.
I am passing on this advice from one who has been there.
Good luck & God Bless. Let us know how things turn out
I found my memory was so bad when my sister was diagnosed with a brain tumour I just couldn`t retain any info that anyone told me I was too scared and anxious. I had to go a meeting with the Drs and surgeons and i took along one of those little voice recorders (can`t remember what they`re called now) lol.........I asked the Drs if they minded me recording them and they were happy to let me..im glad I did because the meeting was an hour long and there was only me to listen and take it all on board.
I have had my Left kidney out so can pass on my experience to you and hope it will help..I am a success story.
Was told last year that i had a tumour 5 cm on my left kidney. It was found by accident when i had a CT scan.
My kidney was removed and the adrenal gland. The surgery was performed through my stomach because i had metal screws in my back and as the surgery was 7 hours long, the sugeon thought that it would put too much strain on it.
Every thing went well and they got the whole tumour. I was in hospital for 8 days.
I did not require Chemo or radiation and have 6 monthly checks.
Was wondering why that surgery is not an option and that is one thing that should be addressed to your Surgeon. Tumours grow and the longer it is left the bigger it gets.
Give your mum my love and i wish her all the best. Keep us posted.
