Went for talk with my nurse today Amanda she ie great you all know been having few prbs mentley that is .told her about the chat and how so many folk dependid on it she said it would come back has it .Any way apart from that i managed to ask the questions that i could not ask efore chat.you dont know how much confidence it has given me thats why need it back. As i never had any symptoms off the c i wanted to know how i could tell if it was coming back i now know the big one though is will i really beat this this answer not so good ,I had thought that after five years in remission i was cured not so been reading what was said wrong or more like not acepting what they told me in my head.What they mean is they try to keep me in remission for five years but that IT can come back any time before or after and if it does then my chance of a lot longer life is limited the five year mark means if comes back just better chance of long term remission.IT never really goes away.does that make sence. Some off you will know i lost afriend recently my mac nurse also told me how she died and why.she had a relapse and then caught an infection which did not respond to treatment she went very peacfully at the end so i am thankfull for that .If i have to go then thats how i want to go Oh1 has any one out ther had an email from a miss long about a dissertation she is doing on AML SHE NEEDS aml PATIENTS TO HELP HER .she wants to interview them about thier experiances ive signed up if any one else wants to reply to email if not got it let me know and will send it you
