these are the things all of us who are dealing with this monster have to make at one time or another , wether we are patients or carrers.At the time we don't know if we are making the right one but hope we are . In the future i will have to make one it will be if i should have a stem cell tansplant or not if i do have one the chances of comming through the actual trans plant are as little as 10%if i dont then i go on palitive careand we all know the out come of that .It would seem an easy decision but believe me its not . it took a lot of thinking about to go through all that chemo and every thing else again with not even a sure out come was it worth it . I made my choice and will have it if offered .In one respect i am luck even though there are a lot of family and friends out ther who suport me i live alone and its my choice alone .
I can see how much more difficult it must be for those of you who have wives husbands or children to think off when you have to make these life threatening decisions . I would like to say I trusted my medical team and i have to rely on what they say is the best thing that they have to offer at this time . in the future god willing we may find a cure for this monster but not yet . I think those of you who are carrers and may have to make decisions for members of your family who can not make them for them selves must be in the worst position of all .will the decision you make be the right one if not was it your fault . I dont think it would be you do what you think was best at the time with all the advice you can get from your docs and if things go right great ,if not sorry, but not your fault.i think what i am trying to say is have trust in those who know a lot more than we do I have wrote this for those who may have such decisions to make .
