Pulled from clinical trial

1 minute read time.
My husband Abel was in a clinical trial for metastasis esophegal cancer. It was a very intense trial. It was to be 6 rounds with a total of 18 infusions. He was to complete the 4th round last week but was experiencing a great deal of pain in what he thought was his liver area. The doctors moved up his cat scans and it was detected that he had 12 spots on his liver. ( that was the wet read) He could no longer finish the trial and they unhooked his pump. They have decided that he needs a rest of at least 3 weeks to rest his bone marrow and side effects. His mouth, lips and hands were extremely bad but was still and continues to eat and swallow well. The next day we received a call from the hospital that they found he had blood clots in both his lungs and that we had to return to the hospital to learn how to inject (a blood thinner) Loveonox. He is taking morphine for pain but does not take it during most of the day as he wants to drive and be busy. He has not missed a days work all during his treatment which is more than I can say for myself! The only days he missed were Tuesday for his treatments. The morphine makes him sleepy and we are seeing the pain management team on tuesday to get him on a plan. We are also meeting with his team of doctors to discuss what has transpired up until now. We are going to be asking them some tough questions and I am so afraid for their answers but my husband wants to know. Does anyone have any experience with esophegal cancer that has gone to the liver? Thanks in advance! xoxo MB
Anonymous
  • FormerMember
    FormerMember

    Oh, what a lot you have both been through! I really admire your husband for his strength in all this. It's obviously a very worrying time for you but knowledge is a powerful thing.  You will both know what you are dealing with and then channel your energies into dealing with it. I can't help you with your question but just wanted to send a hug to you both. I will be thinking of you.

    Take care

    pheonix  xxx

  • FormerMember
    FormerMember

    Yes, knowledge is a powerful thing. It's just when we think we know what were dealing something changes for the worse. It's becoming harder to find positive thoughts and strength for me right now. I don't convey this to my husband. I point out that he is eating and swallow better than he was when first diagnosed.

    Thanks for taking the time to say hi. Hugs and prayers to you. MB xoxo