NEED SOME HELP PLEASE for Dr's appt. Tues. Questions to ask

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Hi: Please excuse spelling errors, just going to wing it with out checking for errors. Abel is scheduled for an appt. tommorow with his team of doctors. I wanted to ask for help on being prepared for this meeting. Quick update on to what has transpired. He was diagnosed in sept with esophogeal cancer and we learned in Oct. that it had gone to the liver and lympth nodes. Surgery was no longer an option and the game plan had changed to control. He started a clinical trial in Oct. which would be for 6 rounds of treatment, a total 18 infusions. It was tough with the side effects and having to wear the pump 24 hrs a day. Last week he started having pain in his liver area with a back ache. We saw the dr. before his infusions and he ordered a cat scan. He was scheduled for a routine one on Friday so they moved it up. They gave us a wet read of the results and it was found that he had 12 spots on his liver. When first learned of liver involvement there were only 3. He was pulled from the clinical trial which is a normal protocol for a trial if there is advancement of the cancer. We also learned on the next day when the full report came back that there were blood clots in the lungs. They put him on Loveolox injections 2 times a day. They did say they would resume treatment in 3 weeks to give his bone marrow and side effects to ease up. We will learn the plan on Jan 30th. I have a list of some questions but this is an important meeting and want to be as organized as possible. Here are some questions that we have. Can you think of any others? 1. Want a pet scan ordered before the 30th appt. to avoid any delays 2. He has been having headaches Most other questions are involving his side effects. Any assistance would be greatly appreciated! xoxo MB
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