A rock and a hard place

Hi Mrs P

Big hugs for you and hubby.  Hope you get through today and tomorrow is better.

I know how you feel about the length of time it takes to get things sorted.  The NHS wheels seem to grind very slowly at times like these.

Much love,

Nin xxxx

Hi everyone,

Mrs P here.

Thank you so much for your kind comments. Pat is feeling better today. I am optomistic that we will hear quite soon as the hospital concerned seems to have a good record on seeing pts quickly. I will push if we don't hear but the referral only went on 4th Nov, so I have to give them time to respond.

Will keep you posted.

Mrs P.

Hi Mrs P here.

Well, we are moving through November and still no word from the hospital so I phoned yesterday. Referring consultant's secretary was great. Made contact with the other hospital and confirmed that scan request and letter to surgeon has arrived. Dept of Nuclear Medicine has our home phone no and will be ringing shortly with an appointment for an Octreoscan. Once this is done we will see the surgeon. She gave me the surgeon's name and contact phone nos.They have been in receipt of the referral for 2 weeks now so only have a little longer to meet the 31 day guideline to begin treatment. I expect we will hear soon and she feels we will probably hear by the end of this week. It's not the waiting so much as not knowing what is going on that gets to me.

Will keep you posted. 

Hi Mrs P here,

I am now registered as panda692 in my own right on here.

I am pleased to say that Patrick received his appointments today for his Octreotide scans next week.  A brown envelope arrived in this morning's post and I thought it looked promising but just gave it to him saying' I think this is more junk mail', so he wouldn't get his hopes up too much.  It has been a difficult time waiting and interestingly the scan is on the 31st day since the referral was received. Just on target. He will go on to see an Oncologist after that.

The Director of Clinical Oncology to whom he was referred is now on long term sick leave so he will be seen by another consultant in the team. If you read back on this blog you will see that Patrick is quite unlucky with doctors being ill.

Anyway, it is a relief and our son is coming up here to stay and help with driving as I have poor night vision on unlit roads. That will be a great help.  Will keep you posted. 

ps;

Just reading back and see that we had not posted that on the day we called in to clinic to get the Biopsy results, they were not back 10 days after the test. There we sat with the consultant who was mortified and told us that the Consultant Pathologist was ill and his work redistributed, hence the delay. Frantic phonecalls by him over the course of the afternoon finally got a partial result for us at nearly 5 pm. Our family waiting at home for the results were distraught. All very infortunate but sorted out in the end..