a little bit lost

Less than one minute read time.

Hi, I am new to all this and more than a little confused....by both the blog stuff and by the whole cancer experience.

My 18 year old daughter was diagnosed with leukaemia in september, and is now waiting for a bone marrow transplant, which we hope should happen in the next few months. She has had a few very sticky moments over the last few months but has proved to be the fighter I knew she was and come through it. She's had her ups and downs emotionally too, but overall has handled the whole thing so well.

Initially we were so stunned with the diagnosis, and as it started to sink in there were so many complictions and things going on that we never really had time to think.  As she seems to be more stable now, and getting stronger each day, I am heading in the other direction and feel I am slowly unravelling and falling to pieces.

It's great to see on here that we are not alone though, and hopefully I can pick up some tips on how continue to handle it all so I can support her once again through the tough times ahead.

 

 

Anonymous
  • Hi Crazylady,

    So sorry your daughter has been affected by this horrible disease. I think you have answered your own problem by saying that now you've slowed down and that your daughter is more stable you find yourself unravelling. Whilst you were running around 'doing something' you didn't need to think about the seriousness of the situation. As a patient myself  I know that once over the initial shock I just got on with the treatment and had a positive focus. I fell apart a year later when I was putting the Christmas decorations away because I suddenly realised I had 'made it' for another Christmas.

    I hope your daughter has continuing success in beating this disease.

    Best wishes,

    KateG

  • FormerMember
    FormerMember

    hello hun - i know exactly how you feel - my son is 32 he was dx with TC last feb - had chemo and op and is waiting for another scan ....on tues !!! he had hodgkins 10 yrs previous - not related -just pure bluddy bad luck...... well 10 yrs ago i hung on in there but 12 months after he was diagnosed after his all clear ..... i walked out of work ...just cracked up really ..... it did make me realise that we dont have to be "strong"  or "brave" all the time if we feel crap then thats ok too .......

    we wouldnt be loving mums if we didnt feel crap when one of our babbies were seriously ill would we

    and if/when needed you will find your inner strength again ....

    (((hugs))) and strength from me to you

    xNx

  • FormerMember
    FormerMember

    HI SORRY TO HEAR ABOUT YOUR DAUGHTERS DIAGNOSIS... AVING WORKED ON A CHILDRENS BMTU FOR THREE YEARS , I KNOW THE TREATMENT CAN BE A BIT HARD BUT THE RESULTS ARE VERY GOOD FOR LEAUKEMIAS , HANG IN THERE , YOUR DAUGHTER SOUNDS LIKE A FIGHTER ..... HUGS ALL ROUND XXX

  • FormerMember
    FormerMember

    thank you so much for messages of support, to know that it's not me going mad suddenly is a relief, it's just a delayed reaction. Unfortunately we have had another hiccup this week - she has a severe viral infection and is now back in hospital, so once again I am back in the routine of work - hospital  - bed with nothing in between, and it feels reassuringly familiar, so i actually feel calmer. Strange, but I think it comes from knowing someone else is watching her too.

    Thank you so much for the messages, you are all so strong to be dealing with your own situations and yet support someone else. Good luck to you all xx

  • FormerMember
    FormerMember

    Home again! I see more of her when she is in hopital, but I love that she is out living her life when she is home. Thankfully she has never been a pub and club person, so at least I don't have that worry!

    It's great to see her happy, and although she can't do the things she used to just yet (especially karate - not a good idea just now!!) she has just found things she CAN do instead...despite all she has been through and having to effectively learn to walk again, she is well on her way towards her target of walking a mile for Sport Relief. Various lung problems, heart problems, and toes that "should fall off on their own"  etc won't keep her away from the gym. Tiny steps are huge achievements, and I'm so proud of her :-)