Over the weekend my throat gets a lot worse, ulcers in the top of my mouth and sides of my tongue now which isn’t helping, still no taste.
But just 5 days of treatment left…… not that I’m counting !
Monday 25th August. Radiotherapy session went ok, mask is tight but bearable.
Felt tired on the drive home, so decided to have a sleep once I get home. Ended up sleeping for 2 hours, didn’t realise I was that tired.
Mouth and throat both very sore when swallowing anything.
Tuesday 26th August. Radiotherapy session ok, rest of the day was ok but not wanting to eat anything, but keep telling myself that eating is part of the medicine, so I must do it.
Wednesday 27th August. Radiotherapy session ok, two left
Consultation meeting included the speech therapy nurse and the dietician. They were surprised I had got this far without having to use the PEG, the speech nurse check I could still open my mouth wide (3 fingers) which I can, just!
Went through my meals with the dietician and agreed that I should also take codine as well as the paracetamol to help to reduce the pain while swallowing and to drink more of the fortisip energy drinks to make up for the less food I’m eating.
They will organise more laxative now that I am also taking codine.
Thursday 28th August. Radiotherapy session went ok
One left !
Friday 29th August. Final radiotherapy session today, which I’m glad about.
Bought the staff some chocolates as a thank you, they have been very friendly and helpful always with a smile on their faces and asking how I’m doing, which means a lot each day.
Decided to take my mask home with me, much to the wife’s disgust, I’ve no idea what I’m going to do with it, other than if I’m having a bad day in the future I can look at the mask and remind myself of worse days !
I’m not eating much now as my throat and mouth is so sore, so having to drink the Fortisip energy drinks in place of food. But even drinking these hurts.
Still taking paracetamol (Soluble) during the day, but this is really stinging even after having used the mouth wash that slightly numbs my mouth, I just have to keep telling my self that this will all improve soon…………….. I hope.
What Have I learnt?
Ulcers in the mouth are hindering my eating, so much I’m not sure I can continue eating and may have to resort to the PEG.
Saliva is still thick…. Not at all nice.
Still have no taste, everything I try and eat has the same bland taste, this isn’t helping me to eat, but eating is part of the medicine so have to keep going !
The tiredness from the treatment has, I think caught up with me, as felt more tired this week than before.
