2nd blog attempt!!!!!!!!!!

2 minute read time.

Well first attempt abject failure got that wrong and didnt actually write anything in the main body of the blog, oh well on a learning curve here hopefully will get it right next time.

Wanted first blog to be happy blog, but circumstances dictate this not to be.  Have nodular melanoma diagnosed at end of Sept 09, rollercoaster of appointments, scans surgery etc since then, what happened to my life, where did that disappear too might I ask?  Anyway told CT was clear, however on seeing the oncologist he mentioned that I had an enlarged node in my right axilla, original melanoma on right arm, whoops could be nothing, could be something.  No one could actually feel this node so after a bit of encouragement from myself as to what exactly they planned to do and when, yesterday being a good time, they decided to do a fine needle biopsy under ultrasound guidance.  Doc had a job to find the node, me thinking thats good its gone down, however when he checked on the CT scan he did find it and then stuck a needle in it, then on Monday the unwanted results, it is melanoma so that means axillary clearance, darn and blast (or whatever expletive is your favourite, dont want to offend anyone so feel free to fill in yourself).  I now have to wait to be talked about at the Multi Disciplinary Team Meeting on Thursday next, will be referred to one of the breast surgeons and will no doubt have to wait weeks for an appointment to be seen before being given a date for the surgery. 

I am really keen to be part of the Avastin trial for melanoma and that means I need to be healed by the end of January as you have to join the trial within 12 weeks of your wide excision, so have explained this to my specialist nurse and hopefully will get a date really quickly.  Did say I didnt mind being done this side of Christmas LOL, like that is going to happen, however if they get their skates on perhaps could be done between Christmas and the New Year. Anyway fingers crossed everyone I get it done and will still be able to be part of the trial.   I know I might not even get the drug, that I could be in the non drug group, but at least I feel I would be doing something and contributing to the better understanding of this disease.

Will update the blog when I hear, also any experiences of an axillary clearance gladly received.

Love, hugs, best wishes and as happy a christmas to everyone as can be, Jan XXX

Anonymous
  • FormerMember
    FormerMember

    Oh heck Jan, sorry to hear about your node!  Quite a number of people will have had the axillary clearance, especially our breast cancer buddies, and I know that Tuckerz did too.

    Hope you get a date through for surgery quickly and you are accepted for the avastin trial.  I got the observation arm, which is a bit sucky, especially as the observation I've received hasn't been all that observant, and for that reason I still see my dermatologist too.

    Wishing you a peaceful and uneventful Christmas.

    Marsha xxx

  • FormerMember
    FormerMember

    hey jan,

    just wanted to say hey and send you my best wishes, i had an axillary clearance in august as i had a tumour on my breast, the cancer had spread to my lypmh nodes so had to have them removed, to be honest the surgery wasnt that bad, the drain which i had for a week was a bit of a pain but it was bearable and it did its job, had a bit of pain in the arm as they do cut through the nerves but these are controlled with painkillers, still have a bit of numbness but i have full movement back in my arm, they found it in 10 out of 19 nodes so the way i look at it is they caught it in time, in the middle of chemo now which is the hardest part but with help and support im getting there. im here if you ever wanna chat, all the best for your surgery and i hope you have a great christmas.

    lots of love and hugs

    sam

  • FormerMember
    FormerMember

    IHi Jan,

    It's good to see they finally got their act together & have at last made a diagnosis but sorry to hear you now have to have further surgery. I hope you get it done as soon as possible and can then get on with your recovery and look forward to a Healthy New Year.

    I also hope you get on the drug trial - I know how much it means to you as it did to me. I was gutted when I was turned down but I am now focusing on other ways to look after myself in an attempt to stop it returning . So don't beat yourself up if you don't get on it at the end of all this - I tell myself that at least I didn't get knocked back by the computer, I don't have the side effects & I can control what I put into my body to help protect myself!

    I hope you and your family have a wonderful Christmas & a very Happy & Healthy New Year and I look forward to hearing about your progress soon, lots of love Angie xx