Yes, we did ask lots of questions. We were in no doubt about the outcome of this terrible disease . We had 5 not to bad yrs, we took each day as it came adapting along the way. My husband is now very frail, but still lucid, his tumour is right frontal lobe. I cannot imagine trying to go through this with 2 small children, mine are adults with children of their own, 6 grandkids we have. Try to get as much support as you can, encourage the questions, I do a lot of my own research, then, relay it back to my husband. I want you to know that I fully understand your situation, I don't think you can unless you are in it yourself. Maybe your husband is not ready to come to terms with it just yet, I don't know. There are people you can contact, McMillan nurses, specialist nurses etc you have to do what is right for you, there is no easy answers, it is a living nightmare. One thing my husband agreed to do was try cannabis oil, initially to help with seizures, but it helps him greatly with agitation and aggression, just a thought. Just message me if you want to chat or ask anything, I'm always here,2 minds are better than 1 when you are dealing with something so massive x maggs
Yes, we did ask lots of questions. We were in no doubt about the outcome of this terrible disease . We had 5 not to bad yrs, we took each day as it came adapting along the way. My husband is now very frail, but still lucid, his tumour is right frontal lobe. I cannot imagine trying to go through this with 2 small children, mine are adults with children of their own, 6 grandkids we have. Try to get as much support as you can, encourage the questions, I do a lot of my own research, then, relay it back to my husband. I want you to know that I fully understand your situation, I don't think you can unless you are in it yourself. Maybe your husband is not ready to come to terms with it just yet, I don't know. There are people you can contact, McMillan nurses, specialist nurses etc you have to do what is right for you, there is no easy answers, it is a living nightmare. One thing my husband agreed to do was try cannabis oil, initially to help with seizures, but it helps him greatly with agitation and aggression, just a thought. Just message me if you want to chat or ask anything, I'm always here,2 minds are better than 1 when you are dealing with something so massive x maggs
Yes, we did ask lots of questions. We were in no doubt about the outcome of this terrible disease . We had 5 not to bad yrs, we took each day as it came adapting along the way. My husband is now very frail, but still lucid, his tumour is right frontal lobe. I cannot imagine trying to go through this with 2 small children, mine are adults with children of their own, 6 grandkids we have. Try to get as much support as you can, encourage the questions, I do a lot of my own research, then, relay it back to my husband. I want you to know that I fully understand your situation, I don't think you can unless you are in it yourself. Maybe your husband is not ready to come to terms with it just yet, I don't know. There are people you can contact, McMillan nurses, specialist nurses etc you have to do what is right for you, there is no easy answers, it is a living nightmare. One thing my husband agreed to do was try cannabis oil, initially to help with seizures, but it helps him greatly with agitation and aggression, just a thought. Just message me if you want to chat or ask anything, I'm always here,2 minds are better than 1 when you are dealing with something so massive x maggs
How are you getting along. I have not messaged in a while, my husband passed away on the 22nd of March, after 9yrs fighting this cruel disease. Message me if you want a chat, or to share your worries or pain x maggs
I am so sorry to hear of your husbands passing. I’m sure you are lost at this time, 9yrs of a fight and always knowing this would be his fate, it’s a cruel disease. How are you?
All is going ok at the moment, my husband was put on anti depressants by his consultant after Christmas and they helped. He’s also back to work and playing sport and this has also improved his mood. He is still different, not everyone sees or understands!! He was getting pain in the back of his head last wk and sensations in the side of his head, he said he feels like the tumor could be back. I wish we knew what the symptoms were as he never really had any of the symptoms that they say to watch out for. He is an mri on May1st.
If you have any advice for me I’d be grateful, I don’t even know what I’m looking for!!
Thank you for you message, you are very kind to be thinking of me at this time.. xxxxx
I came across this post when I googled Brain Tumour and nastiness. I was with my husband for over 20 years. He always had an angry streak and had choked me some years back. However, we lived in the Middle East and he had just lost his job and was under a lot of stress so I did put it to one side. I can’t say ‘forgave him’ as it was always in the back of my mind. The thing is my husband was an amazing guy. If someone met him they’d be so jealous that I was his wife. He was a top banker, well spoken and beautifully turned out. He was like the dream husband. We had the most amazing life - almost like a footballers with beautiful holidays and everything we could dream of. We had everything, then a few years ago, after a party, we had a row and he hit me to the ground. I laid under our lovely car on the driveway where he’d hit me and swore this would never happen again. Because I couldn’t dare take my son from him, I stayed a while but put a plan into action. I managed to get to the UK and everything was ok. My husbands temper was ok and things seemed better. I don’t know if I was wrong, but I really wanted to make out marriage work. So I paid for a hotel room and made a special evening. He was so uninterested in me that I felt something was wrong. It turned out he had been on a date with a 20 year old!!! He is in his 40s. I filed for divorce immediately. During a horrific court battle (it’s cost me £50k and he’s still not filled the forms properly) he discovered he had a grade 3 giloma on the left frontal lobe. This might sound crazy but I am devastated. Not once whilst all of this has happened did I stop loving the man. He was like Jekyll and Hyde. So would be the most amazing person on earth and then the dark cloud would come and he’d say nasty things or not often would do something bad. Because I have filed for divorce his family banned me from their house and we were not allowed anywhere near him!!!! This has been the worst experience of my life as I wonder how much nastiness was the brain tumour. They think he may have hadn’t it for years. It’s absolutely broken my heart in two. Somedays I can’t even open my bedroom curtains. We had the perfect perfect life that I couldn’t dream of, but there was this nasty side too. I just long for the nice side and find it so hard to deal with. I just want the nice husband back, although he doesn’t want me at all. He’s now taking someone to our holiday home and the divorce hasn’t even been finalised and it’s all so so hurtful. I don’t have any family as they all died very young. It’s just me and my teenage son.
Sorry for typos, it wouldn’t let me change for some reason.
So I just wanted to say for those that have had the nastiness side of a brain tumour you are not alone. It’s been horrific. Like I say to my son sometimes, it’s so different to another cancer where you might be able to reason with someone. He sees nothing wrong in anything he does but thinks I’m some evil person who is to blame for everything. I even had to call the police because I had the heating on and there was a huge row where he couldn’t understand the heating wasn’t actually on, but set at a temperature so it would come on when it hit 17 degrees. I think because I have been so snubbed by everyone, including him, that I’m finding the diagnosis and coping with everything really hard.
I am sorry for your husband and your relationship.
I have a Blastoma brain tumor and started in the April 2017. I had a 4 grade and was not well.. The docs were well and my family helped a lot. A know have 4 grade for 2years and 6 months. Are have around 28 cycles and all the horrid drugs within.
The although horrid partnership and each had to take bad conditions don't help.
Thank you so much for your lovely message. I’m so sorry to hear about your health problems. I know it is much worse for the patient, so feel awful complaining. I guess I just got shut out of it all so much and I wanted to help him. I did find him one of the best drs in the UK and he had amazing treatment, sadly he still shouts at me that I wasn’t supportive and don’t care. It’s difficult for everyone in these situations I guess.
Sneding you lots lots of love and thanks again for your reply.
