My husband (aged 61) was diagnosed with Sezary syndrome on Friday. To say it was a shock is something of an understatement. He went to see a dermatologist privately, who was provided by his company’s insurance. He went with an itchy skin and was bluntly told he has aggressive sezary, that it isn’t curable and there was no treatment available.
Looking online at the nhs site, it would seem there are several treatments available. My husband has an appointment with an nhs dermatologist consultant next Saturday.
We are still reeling from this and would appreciate any advice about anything really.
Great, you now know what has to be done. The cogs in the system can work slowly but once in things tend to move quickly.
You are most likely correct that when it comes to the treatment of these types of skin NHLs the private system won’t tend to look at treating and punt you to the overworked NHS
This is a life long journey so keep the contact going as I do understand the many challenges that may have to be navigated.
The main tool will be the skin biopsy, I never had a blood tests that pointed to anything about my Lymphoma and it took about 12 years before something showed up in my Bonemarrow - it’s a tricky type of cancer.
If it’s a straight forward skin biopsy 15mins + hanging around time to get it done.
