My name is Norman, aged 70 and I was diagnosed with prostate cancer in Apr 2022. I was fast-tracked through the system, having a biopsy, bone scan, ct scan etc. My problem was that I had non-secretory prostate cancer so my PSI blood levels were always lowish ie under 2 in blood tests. In the end I insisted on having a biopsy and that is when it was finally confirmed. The cancer hadn't spread to any other parts of my body.
I had my radiotherapy to my prostate and pelvic areas in 20 sessions between July and August last year and my last blood test showed a PSI level of >0.01 with no further action needed. I was released from the cancer clinic and sent back to Urology. I have three monthly hormone injections to stop my body producing testosterone, this will go on for three years.
I find I am still having side effect from my treatment, mainly sleeplessness, loss of muscle power mainly in my legs and still get occasional mucous leaks from my bowel and have piled weight on through lack of exercise. Before my treatment I was a hill walker, especially in The Lake District.
Apart from just introducing myself, I'd like to get peoples advice on whether I should be having more frequent checkups as I haven't heard anything from the Urology Dept since I was passed to them and also, are my side effects inline with other peoples.
I'd appreciate any advice please.
Hi Norman
If it helps some of us "regulars" have posted our personal journey for others to read. You can read mine by clicking on the icon of the beach.
Best wishes - Brian
Macmillan Support Line - 0808 808 00 00, 7 days a week between 8am-8pm
Strength, Courage, Faith, Hope, Defiance, VICTORY.
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