Hi
I feel in a terrible quandary and need some help please if possible
My husband Peter
diagnosed year ago
PSA 7.4 grade T3A Gleason 9 not great
had a radical prosectomy March last year ( surgeon left in all nodes) As pre scans showed N0 M0
it left Margins a ureatha stricture and a PSA of .06 and a change to T3B as had gone into one seminal vesticle
was put on hormone therapy
7 months later after two PSA tests both down to 0.1
oncologist ( who is very non communicative) agreed to salvage radiotherapy to the bed and nodes
But wrote to our doctor saying “ likely to fail “
My husband had a dreadful time with the stricture after operation and after 8 days of RT it’s playing up again and he has looked more into things ( we were only given a leaflet by the oncologist) and it seems this treatment can cause untold damage to some and can definitely cause strictures with long term side effects of incontinence
This morning he is a heck of a state the whole thing is affecting his mental health and he really does not want to continue this treatment We have no one to talk to that seems to have time and I am so worried that without this treatment his cancer will return
Can any one please help us
Christine
