Hi
I have ET (with CALR) mutation (November 2022) and following a bone marrow biopsy (January 2024) advised I had very early stages myelofibrosis. Due to early stages, being treated for ET with aspirin and hydroxycarbamide.
My Haematologist informed that I don't have cancer and referred to it as a blood disorder.
I am wondering whether I should seek a second opinion as I am not sure I am being advised properly. Consultant Haematologist is not an MPN specialist and is currently liaising with a specialist to determine if I should change to injections due to my regular bouts of exhaustion.
I am 58 and recently reduced my hours at work due to exhaustion.
I would be grateful for any advice or contact from anyone on a similar journey.
Thank you.
