Anyone been in this situation

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My husband was diagnosed with lung cancer, 2 mets into lower back & one small met into brain.

He started his first immunotherapy on Friday, so far all good. He was due to start Zometa bone treatment & the doctor explained that Zometa would help with the bone pain, but before he could start that he would need an up to date dental check up. His NHS dentist he last saw in October said no chance, probably May if lucky. So we paid privately to get this check up done yesterday, 5th April. Was shocked to be told he needs 3 extractions due to teeth being loose, although they feel fine, the x rays show otherwise.

Which means Zometa will be delayed for at least 3 wks whilst these heal.

Is there any other bone treatment or even radiotherapy which could be used until the Zometa starts?

Hes currently taking cocodamol which isnt really doing much now, takes the edge off so to speak.

I've been googling & sometimes radiotherapy can be usrd on bone mets.

This is the only problem he is having with his cancer, just lower back pain & its now affecting wanting to go out as to uncomfortable walking.

No idea how his last dentist missed these 3 teeth & how the teeth arent painful or feel loose. It just feels like another set back, as it took weeks to get a treatment plan to get started & now this has happened.

He is.also due a one session cyberknife on the brain met ( 6mm) on the 14th, there was no mention of dental check ups for that, but if these 3 teeth extractions delay that, christ knows how he'll react, as hes been wanting this sooner than later, as hes worried sick about the brain met, as he had a stroke in 2018.

Just feels like 3 steps forward & one step back....

Has anyone else been in this situation?

Thanks x

  • Hi Tillyboo

    It is always frustrating when a treatment is delayed, regardless of the reason why.

    The mouth is the most common entry for bacteria entering the body, which is a 'no, no' for any cancer treatment that reduces the body's immunity.  Plus side effects from Zometa  can include 'changes in the mouth or teeth, such as: loose teeth. pain in the teeth, jaw, or mouth'This is probably why they wanted the dental check up before starting Hubby on the Zometa.

    The cyber knife treatment for the brain met is a non-invasive treatment and probably will not be delayed due to the planned teeth extraction/recovery.  As the cyberknife is a form of radiotherapy, so it is unlikely that Hubby will be given radiotherapy for the back pain as they are restricted to how much can be given in various forms over a relative short period of time.

    Hope this helps a bit.  I wish the best possible outcomes for you and Hubby.

    Kegsy x

    "If you are going through hell, keep going" ; Sir Winston Churchill
    " Cancer may take my life; however it will not become my life" Kegsy August 2011
  • Hi  any of the bone treatments can effect the jaw, causing real problems if there are any dental treatments that are necessary during treatment. I am on 6 monthly denosumab injections to strengthen my bones, but have to have a dental check prior to each injection. 

    Zometa is another name for zoledronic acid infusion, I will pop a link to an information sheet below for you.

    zoledronic-acid

    “Try to be a rainbow, in somebody else's cloud” ~ Maya Angelou
    Chelle 

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  • The nurses gave us loads of paperwork regarding all his treatments, but was so shocked about his dental check yesterday. As this shud av been picked up on his last dental check 4 mths ago from his original dentist. Although his teeth arent loose & no pain, its the xray that picked up the loose teeth.

    The teeth are being extracted privately ( thanks to Mr Credit Card!) On Weds.

    But the dentist wants me to ask tomorrow if its ok to go ahead with removal of teeth & if ok to start antibiotics.

    I had to ring Monday anyway with dental update, as we all thought it was just a precaution & Zometa would start next week.

    Its just the pain side of things, I spoke to my hubbys consultant a wk before immunotherapy started & I explained the only issue he as is lower back pain. She mentioned oramorph, but was more keen to wait until Zometa started as she said that would help with pain. So now another 3 wks approx before Zometa can start because of the teeth. I just wondered if there was any other pain relief/bone treatment that could be given in the interim until Zometa started & if anyone had any similar experience.

    So my husbands been walking around with stage 4 lung cancer no symptoms ( aside from back ache, he put down to age) & 3 loose teeth no symptoms....

    Hopefully everything will all get sorted..x

  • It’s frustrating I know. I am sorry your husband is experiencing this back pain, it sounds like the teeth issues have him in a catch 22 situation. 
    I was the same as your husband, no symptoms at all, until the tumour got too heavy it broke into the bronchial airway. I had no pain, no cough until this point. I spoke to my oncologist at the time about this, and she said that the lungs have no nerve endings, so I would not of felt it, and if it hadn’t of broken through into the airway, I could of carried on for several years not knowing I had it. Scary isn’t it. X 

    “Try to be a rainbow, in somebody else's cloud” ~ Maya Angelou
    Chelle 

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  • So scary! He found out purely by chance having a rountine chest x ray at the end of January. Otherwise no idea. He as a 5cm righ lower lung tumour 2 lumph nodes ome 6mm brain met & 2 lower back bone mets. The brain met requires one 45 min cyberknife & finished. Immunotherapy every 6 wks, as chemo was dropped due to having high protein levels.

    It still doesnt feel real TBH but we arent as distraught as we were at the start. My husband was called into the respitory clinic to discuss his chest x ray/ct scan thinking it all related to scarring from a severe pneumonia 11 yrs. He was alone & the doc said u have cancer, we think its spread Pet Scan next referring u to the Royal Marsden.

    To say he was absolutely devastated is an understatement, he even packed a bag & run off for 4 days!! And I was left at home trying to make sense of it & book appointments.

    We all presume if u have lung cancer u have a cough, chest infections, shoulder pain etc as per tv ads. But he had nothing & the way he was told was brutal, I think, somebody should have forwarned him to bring a someone along to that initial life changing appointment.

    Hes now under the Royal Marsden in Sutton & they are absolutely amazing. Prof O Brien is his Oncologist & Dr Watts is his trial doctor, as hes on the Strike trial for the brain met & Dr Welsh is his Neuro doc for the cyberknife. All keep in touch explain things & all the lung nurses are amazing & answer any questions. Even down to hospital transport, cant fault any of it.

    I hope everything is going ok for you, treatments etc x

  • The Royal Marsden are top in their field, so he will be getting very good care.

    It is shocking how people receive their news. Mine was just as bad. I thought I had a chest infection, so after the 3rd lot of antibiotics I suggested to my GP that I should have an x-ray  Just a few days later my gp phoned me, asked if I was driving, I said I was not. He then said “ I have your x-ray results, you’ve got lung cancer and it’s in both lungs” I don’t even remember the rest of the conversation, but what the GP didn’t know was that I wasn’t driving, but I was alone and just getting into my car to go pick my daughter up from school. I was 44, a mum to 3 young girls and scared to death. It didn’t get any better for a while because when I then met with the respiratory doctor, he told me I had 6 months to live! That was 10 years ago, so never give up hope! X 

    “Try to be a rainbow, in somebody else's cloud” ~ Maya Angelou
    Chelle 

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  • OMG! Thats just so awful to told something so utterly life changing over the phone.

    10 years ago, thats amazing. I presume you know all the treatments etc

    They've prescribed him chewable Vit D3 twice daily, which he started Friday, I presume to help with bones/calcium.

    Cannot fault the Marsden, they have been exceptional x

  • There are so many new treatments becoming available, when I joined this site immunotherapy wasn’t even available, and now it is one of the main treatments alongside chemotherapy. My cancer is a sarcoma, so different to the “usual” lung cancer. I was originally diagnosed in 2009 with it in my womb. They didn’t know then that it was feeding off of hormones which is why it has spread to my lungs. An operation, radiotherapy and then hormone treatment has got me to where I am today, incurable but stable. X 

    “Try to be a rainbow, in somebody else's cloud” ~ Maya Angelou
    Chelle 

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  • My husbands is Adenocarcinoma (NSCLC) hes was staged as T3 N2 M1c stage IVB.

    We both thought that was it, the end.

    Told treatable but incurable & inoperable.

    The shock & mental health change in both of us as been awful. Cant put in to words, but you probably know how that feels, as been in the same situation, but younger & having children. 

    My husbands 71 on Weds but always looked & acted younger than his yrs & I'm 61 & the same, except I feel like I've aged overnight.

    Are you still recieving treatment or just regular scans?