So I recently joined the forum having being diagnosed with a Kidney Mass in October 2021. In December 2021 I was told I was on the urgent waiting list for a Robotic Partial Nephrectomy and that it would be a 2-3 month wait. I am now almost at the 3 month mark and am being told that it is more likely looking like I will have my surgery mid to late April now, which will make it 5 months. I have tried going through PALs, I have looked into private (£10K and I can't afford it! ) and now I am finding it more and more difficult to just sit and wait. I feel like time isn't moving and am being given no reassurance whatsoever that my mass won't grow or spread by the time I have surgery. I am 29 (30 in September) and I just want to get on with my life.
Right now I just want to curl up into a ball and cry. Probably a bit overdramatic but I am really struggling at the moment.
Oh that's good! Yes, sounds like a good next step - I feel like I just have to tread carefully because I work at the same NHS trust! :)
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