Pain management

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Hi

T4aN2bM0 Stage 3 nasopharanx cancer

It's my husband again. 

The poor man is in so much pain I don't know what to do.

He's on 100mg Fentanyl patches every 3 days, he takes 200mg morphine tablets under the tongue 6 x per day as well as 3 x 1g of paracetamol sachets. He says the pain is constant.

We invested in a humidifier which, thankfully, has been a great success overnight for his dry mouth and throat.

He's struggling with the protein drinks - this is all he's having. The pain means he can't even think about pureed food. He's terrified of having another bad coughing fit - he's had 2 recently which caused intense pain and discomfort,  let alone how exhausting it is for him. The drinks are making him nauseous so he has Ondesetron to off set this.

He's due to see his radiotherapy specialist on May 8th when we will find out if he's beaten the cancer PrayPray

The pain is causing deep distress and depression to the point of feeling suicidal.  I'm not improving therefore there's no future for me.

I keep talking it up - things will get better. It's going to take time. He's not a patient patient. 

Any and all advice gratefully received. 

I freely admit I'm getting to the end of my tether.

Thank you x

  • Thank you. Yes he understands all this. It's just his psyche that needs a kick up the bum. The negativity is so draining.

    He's drinking plenty of water but coughs after each sip; it's exhausting for him and me Disappointed

  • I'll also get them to listen to his chest as I'm not sure if the cough is an infection. 

    Hi again. If your husband is coughing after liquids he is aspirating. This can be serious and you’re right in getting his chest looked at. Has he swallowing exercises to do? 

    Dani 

    Base of tongue cancer. T2N0M0 6 weeks Radiotherapy finished January 2019

    I BLOGGED MY TREATMENT 

    Macmillan Support Line -  0808 808 00 00 7 days a week between 8am-8pm

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  • I’m sorry to hear both you are your husband are going through such difficult times. Your posts made me reflect on my own situation. I was like your husband , absolutely refused the feeding tube. The very thought of it made me feel sick. I was more frightened of a feeding tube than I was of the treatment. Fortunately I had a very kind and caring consultant who talked to me on my own away from the team and persuaded me to have a PEG. I can’t pretend it was ok, it wasn’t. I hated it, but it saved my life. My consultant was right when he said I would thank him for his persistence in persuading me to have the tube. I also refused morphine but again my consultant persuaded me to have this. Do you have support for yourself? It sounds like you are dealing with this alone and I feel you need support to help cope with the difficulties your husband is experiencing. Please take care x