Nasopharyngeal Cancer sucks

Hi thank you so much they give him so much medication his fatigue is shocking he’s only been home a week and it’s been a hard week

Omg what you have just said above is what we are going through they are worse never heard my hubby swear as much as he has done in the last week I am at my wits end other members on here have been bll and thank god they got back to me anything you can advice me I would be greatful x

Hi I am sat here crying Marcus my hubby hit that wall

Hi I am sat here crying Marcus my hubby hit that wall 

Hello Deebo , so sorry to hear how this is upsetting you , is it possible to make an appointment to see your GP for a chat so he can suggest ways of helping you and your husband , you should not be going through this on your own ,there is help out there but im afraid this day and age you have to ask for it . Sending hugs . 

                                                                                 Chris x

Ohhh Deebo

Chris is completely right in saying there is help available if it's overwhelming you.

Have a talk with your Doctor or team where your husband was / is treated, it's such an intense and completely unknown journey when recovery starts, and i know words do not go anywhere near helping that sense of helplessness we all feel, and it can be just as hard for the partner as it is for the patient ( just in different ways ) 

All that radiation and chemo has to exit the body at some point, and the period he is going through is very tough, but he is not alone, and it will pass, just try and hold onto that as hard as it is .... he will move forward and the symptoms do subside, but when you're in the eye of the storm so to speak, it can seem relentless, I'm not a professional so i can't advise what to do medically, and sometimes it really comes down to sheer determination and belligerence, but it WILL get better ...... hang in there ! 

All the best to you as usual

Marcus.

Thank you for your message some people on here have been brill

Chris thank you again I took him back in last night as we was coughing up coffee colour stuff and constipated and not wee much any way he’s dehydrated so on fluids he can’t sleep due to coughing rettaching mucus’s my heart goes out to him and other people on our journey I learnt so much from this site so bad not had very good experience with own macmillian  I am just not sure why when I hear so many good  outcomes anexperiences I am sure will text you again thank you    

Hi Deebo

sorry to hear that you’ve not had good experience with Macmillan team I was lucky I could  email mine at anytime and get a response monday - Friday.

I know that’s it's an hard time I remember my hubby only said a few weeks ago to  me  he felt so useless in the recovery period that he couldn’t do anything for me ,and it’s a lonely time for you as well. Hang in there,I and many others are proof that’s there’s lights at the end of the  tunnel honestly.some of us take longer than other s to get there. Babybsteps ans some days 2 steps forward and one step back. Have a recread if my blog www.radiotaxtiveraz.wordpress.com if you want some inspiration .

just keep the hydration going as I liken this period to being like an oil filled radiator and slowly the radiothey chemotherapy has to leach out before we can start to get better.

sending hugs

Hazel

Hello again Deebo,

It seems as if you're getting good advice from others on here and some answers to your questions .......

Because you can get so dehydrated during the recovery period ( even though you are trying to get as much fluid as poss into the PEG tube ) or drinking water orally if that 's now a possibility for him, you can still seem to have a much slower and less productive flow shall we say !  ..... again, this is part and parcel of some peoples experience and just another of the things that will pass in time.

As for the brown coffee stuff, yes ... nearly all colours of the rainbow came out of my mouth at some time or another ( not quite, but you get my point )  as all keep saying, it really is a "two steps forward" situation, and even one step back occasionally if you're unlucky.

I cannot stress enough that although many of us experience many of the same symptoms, the actual length and time frame of recovery can be very different person to person, I for example got my taste buds back very quickly, but the nausea and sickness part seemed to last forever  ....others got through that phase much quicker, It really is person to person.

Hydration Hydration Hydration .... I got tired of hearing my hospital dietitian telling me that, but she was of course completely right ..... 

Recovery is hard ....extremely so, but you're not alone, and yes, better times will come eventually, and when they do it is the best feeling in the world ! 

Onwards and upwards ...... 

Marcus