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Hi. My name is Jude. The Highlander has directed me to this site.

I'm 73 and was recently diagnosed with DLBCL. I've had one round of chemo and have come through it relatively unscathed apart from a very dry mouth. Do the symptoms get worse with subsequent cycles?

For the past 3 years I'm been a carer for my friend who has lived with me for 24 years. He was diagnosed with MS in August 2020 but appears to have Secondary Progressive as he has deteriorated at a rate of knots. Following 4 falls last week on consecutive nights he decided it was time he went into a care home. He is currently in hospital undergoing tests.

I feel totally overwhelmed at the moment. I've got numerous appointments coming up and, at the same time, am trying to sort things out for Graham. 

My friend is helping with lifts but is 80 and can't be expected to run round after me. One of my sons lives locally and is on call if I need anything. 

I could really do with someone to help me sort Graham out but I don't know which way to turn.

Everyone says I should be looking out for myself but it's difficult.

  • I ended up in hospital last week with a bad infection. Was sent home after 3 days with antibiotics. Still feeling dreadful now and am due to have chemo again tomorrow. I don't think I can take any more. I feel like letting the cancer take over. I also have had a cold for 10 days and am struggling to breathe.

  • Just had a call from my doc. He says I shoud be feeling better by now so I've got to go for an assessment this afternoon. Hope they will delay the chemo for a week.

  • Sorry to hear this but unfortunately infections can happen......

    I am over 8 years out from my last treatment and just last week I finished a course of antibiotics for a chest infection.

    Let's look for your next treatment to go ahead but a delay will not make a lot of difference to the outcomes.

    Mike (Thehighlander)

    It always seems impossible until its done - Nelson Mandela

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  • Hello gothmother

    I am sorry to hear about your diagnosis and infection. Having the chemotherapy is rough enough without the rest! It sounds like you could do with a bit more support to be honest. 

    Last year I had a cervical cancer diagnosis, 6 weeks prior to being diagnosed with Lymphoma (non Hodgkin). The chemo for lymphoma seems to be one of the most aggressive treatments and the first couple take there toll.  However, I found my body adjusting to the treatment after that and it settled down (I think it was because I knew what to expect every 3weeks)! Keeping a daily diary of how you feel definitely helps. I used to record things like which days I was able to go for a walk, how many paracetamol I took and what my worries were! Then you can look back on it when you have the following treatment to see if there is a similar pattern eg constipation/ trots were a big problem!

    Let us know how your assessment went today

    Linda 

  • Thanks for getting in touch. At the moment I find I'm feeling yucky until mid afternoon when I perk up a bit. I went to the opticians at lunchtime and the walk from the car park did me in. I'm going to a pub quiz tonight but may have to come home before it finishes. Haven't been for three weeks and I miss them. My chemo has been put back a week because my body hasn't recovered from the bad infection I had last week. Both the specialist and the nurses are unhappy that Triage dismissed me when I first rang and said I felt ill. They say I should have been seen straight away. I told the specialist that I had felt so ill I was considering stopping chemo and he said I've got a good chance of recovery and he would 'drag' me through the chemo if necessary. He offered to refer me to their psychologist. I've got some good friends supporting me but obviously, I miss the friend who has lived with me for 24 years. He's still in hospital waiting to be moved to a care home and despite everyone telling me I've got to look after myself first, I still have things to do on his behalf. I like your idea of a diary. Hope we can keep in touch. Jude