Hi all, my dad had a biopsy from his jaw after 18 months of what he thought was a dental problem or abscess that came back as NHL, after his PET scan last week they've determined that it is high grade B cell lymphoma that's also in his neck and behind one eye, they also saw something unusual in his prostate they want to investigate further to triple check, his CAT scan initially also showed an enlarged spleen but fortunately that isn't the lymphoma. He is due to see the doctor who's been brilliant so far this week or next but he's said 4 lots of R-Chop chemo and then radiation.
I have had a friend go through Hodgkin's lymphoma and after a lot and I mean a lot of chemo she had a stem cell transplant and two years on is still recovering and having to have bags of blood. However I know the non Hodgkin's if different and I'm just looking for what to expect, what to look out for and if you've experienced this treatment what myself and sister can do to help him. It's been very emotional, he's my only parent and although I have moved out my sister lives with him so we want to be as prepared as possible for what he will need. He hopes to continue to work but he is aware that the treatment may take it's it's toll and that could change. Thanks so much, Meg
Hi again, yes staging is completely different and is mainly used to identify the best treatments and for how long..... I was stage 4 for years.
We worked on a ‘need to know’ agreement with my various teams. So if everything was going well then great but tell us when their were problems and yes, we did have a few phone calls saying “in tomorrow first thing”
We always went with a list of questions when there was a new direction in my treatment and once we had a good understanding we put the treatment part on the shelf and focused on controlling the battle between our ears.
Pill free will be amazing - enjoy.
Having had Stem Cell Transplant I am left with a few pills for life.
I take an antibiotic (Clarithromycin) twice a day, Adcal-d3 as I have to cover up in the sun all the time and Lansoprazole for my Hernia that developed after being so sick with my last chemo....... they don’t want to touch it but it does not hold me back.
I have been off Acyclovir for a few years now now but still keep an emergency stock if I have signs of Shingles.
Also have energy antibiotics to take at the first signs of a chest infection.
Oh the joys.
It’s a rather odd journey we all go on and everyone will have their own challenges. We are debating the best way out of lockdown as SCT has left my immune system impaired so it’s a balance of getting on with life but being aware all the time. Having done this fir 6-9 months after my 2 SCTs we know how to do this but we have now to allow for the COVID factor......... but live we will.
Let my wife cut my hair last week, she did ok so my have some extra pennies in the future ((hugs))
