Enhertu A tough drug!

Thanks Veronique. I know I have those thoughts and questions every time,  but some how I keep going. I have had some psychological support when things get really tough. 

Hi

I think it’s over a year since you posted this. Are you still on enhurtu? I’ve been on it for almost a year.

hope you are ok!

jude

Hi sorry for jumping on I’ve just had my 3rd dose of enhurtu after phesgo stopped working and my last scan showed lung mets. Due a scan on the 18th of July to see if it’s working. Side effects are not very nice but I don’t mind if it’s working. Hope your okay xxx

Hi Lindz, great to hear from you and definitely no apology needed. I also went onto enhurtu when phesgo stopped working. And it’s worked for about 10 months so far. I’m having more scans on Friday so fingers crossed it’s still working and works for you too. Side effects are rubbish and I have found they’re cumulative but I think people react differently- and they do only last a few days I find (usually days 5-7 for me). I’m finding new ways of dealing with them. Good luck with your scans. Positive thoughts for both of us! Jude 

Good morning, yes I’m the same round about day 5 my side effects start. Good luck with your scan I’ve got everything crossed for you. Have you had shrinkage on this treatment xxxx

Hi Lindz,

I’ve had three clear scans since starting Enhurtu. i also have brain mets and it’s not proved so good at getting thru the blood/brain barrier so I’ve had some radiotherapy as well as the Enhurtu. But for everything else including bone meta it’s been great so hopefully will work for you! Jude 

That’s brilliant I’m dreading my first scan it’s so scary isn’t it. But this has given me some positivity thank you have a lovely day xxxx

Hi, I thought I'd replied before but can't find it. I'm on round 40 of Enhertu (every 3 weeks). My side effects are similar, hit me around 4-8 days but since I've reduced my pain meds the fatigue is a bit better.  It got rid of the brain Mets (almost, had cyberknife for the biggy) and my bone mets is stable, has been whilst I've been on it. I'm walking better(with the help of morphine) and look quite well on my good days. So I'm holding out on this one for as long as it takes and hopefully there will be another one to take its place when it stops working.

Lots of love to all you lovely ladies and gents out there with this darn disease. Hope you find fun and laughter in between the tough days. 

It is scary! A friend told me it’s called scan-xeity. But positive thoughts! It’s worked for me so far and phesgo didn’t so hopefully will be the same for you (& keep working for me)! Where are you being treated? I’m at the marsden in Sutton after I managed to get transferred there from East Surrey. Xx

Good morning, yes hopefully it’s working fingers crossed. My breathing is a lot better than it was so hopefully that’s a positive. I’m in Sheffield I have my treatment at weston park hospital xxx