Hello! I am two years into my journey now. When I was newly diagnosed I took a lot of comfort from reading a positive posts chain on here. It was started four years ago and reassuringly the chain is HUGE. So large that I find it hard to navigate and thought I’d start a new post for some fresh positive stories. If you have a positive story it’d be great to collate them to support people just like me, two years ago, coming to terms with diagnosis.
I was diagnosed stage 4 de novo (that’s stage 4 from the start) ER+ & PR+ with bone mets, in my 30’s with young children. For the last year I’ve been NEAD, or complete metabolic response on scans and I’m still on my first line of treatment. I’ve joined various Facebook groups full of people on the same treatment as me, plenty have been on the same first line of treatment for years more than I have- the other day I read of someone still on treatment from the original trials! I’m on Letrozole and Ribociclib, I was fatigued at first but I haven’t had any real side effects for five months now. I'm doing everything I was doing before.
It's nice to know there's more & more of us on the same path of treatment ( not that I'd wish this sh.t on anyone) but you know what I mean
. I struggled the first few months get the ribo because it was being ordered from a different pharmacy but its just getting easier. Oncologist said she's using this treatment line a lot more going forward as the results are so positive in the majority of cases.
Hooe you stay well & your next scan is positive for you
I’m in a Facebook group for Ribo users. Yesterday someone posted on the group they’d had another stable scan result. They’ve been taking Ribo since June 2017, shortly after is was FDA approved. 
Hello I’m so scared. 3 years post Er + and Her 2 +. I’ve to go for a chest X-ray on Monday for cough lasting weeks ++. I’ve also got niggles mid back. If it’s returned what is the treatment likely t
be
