Palbociclib (IBRANCE) any one had dose lowered

Tea for two 

thank you so much honestly I don’t  know anyone going through what I am I  was thinking cancer is a lonely place no one to talk to I feel I’m going mad can’t cope at times I’m such a strong positive person I’ve had so many health issues I bounced back shrugged it of moved on as if nothing happened even after the breast cancer but this time I’m just not able I’m so frightened I’m watching so many passing from cancer OMG but like you said when I thought about my fear it is everyone else I’m worried about Tomorrow is a new day I’m going to try harder to cop on stop feeling sorry for myself Ohh gosh it’s so hard no let up at all from this is there I always said The best in the world can be done without  but it’s knowing your what we know and waiting for it is scary ohh god I’m all doom and gloom aren’t I Probally  why I don’t confide in my family Please just ignore me just letting off steam I’m really going to change my attitude Thank you your advice did register 

Hi Yankee

You are right it feels like the loneliest place but use the community to support you.  Like Ruby2016 said consider counselling.  Also you should have macmillan nurse at your unit, they are great listeners an have fab advice.

It is scarey but be angry, why me, why now, it's not fair...because it's not. It's a horrid illness an unless you have it you cant possibly know how it feels. 

You will little by little come to terms with it an as the meds start doing their job you will cope.

Tomorrow is another day...like you said, but take it day by day you will get there.

Onwards an upwards x

Ruby 2016 

Thank you so much for replying bear  with me I’m not good at this at all When I was told this time the cancer was back after 2months of tests I was suicidal I did go for one session of counselling the local support centre but I done nothing but cry it was advice I really wanted I went to one support meeting but the group were all years cancer free I was hoping to talk to someone in my perdion it wasn’t for me to be honest

I was all over the place emotionally I never went back felt such a fool just sitting crying I was embarrassed when I left I'm not sure if I should be on here I’m from the west of Ireland very rural 30 mile from a big town  Nobody  uses the Irish on line site I seen this one ye ladies were whom I needed so badly to talk to I’m getting a bit of hope from ye I might have a little more time to enjoy my two new grandchildren A brand new girl and 9month old boy I cry every time after seeing them thinking I might never  see Sarah crawl or Rueben walk he just started crawling How sad am I I wish I could be back to my happy carefree self again and stop bloody crying like a baby I hope your doing good how long are you on the treatment 

Do you tea for two. How you are feeling it’s very normal and just how I am feeling. And every day I worry and try and cope and some days are harder than others. I am getting counselling which is helping. It doesn’t take it away but give you strategies to deal with how are you are feeling and how to cope day today. I also and part of a secondary breast cancer group I was recommended by my oncologists. We meet up once a month and this is really helpful as You get help and support and understanding from like-minded people. I also meet people that I’ve been living with secondary breast cancer or six and nine years and it gives me hope. And we need hope. See if you can find a group to join and get some counselling and know that how you are feeling is very normal. Sending lots of love to you. X

Hi Angles 

Thank you it’s nice to know I’m not being silly or just feeling sorry for myself that you feel the same I’m find it so hard to talk about I havnt told my brothers or sisters yet I thought why upset em as well It would be great to wave a magic wand and make this all go away haha but that’s not going to happen is it Hopefully it gets easier as the treatment keeps working How are doing I hope youkeeping well

Angles 

that’s so interesting some people on treatment for so long  give us all hope woohoo I can’t get any answers of my oncologist as to how long approximately how long  or the longest someone has been on treatment I’m sure this my 5th month I have been lucky my white bloods cells only went down a tiny bit and no side effects I’m on the 125 mg  Imbrance anastrozole 1mg bone infusion injections which have been stopped until I had an impacted tooth removed 60 yrs old and it started to grow haha it is funny expensive funny tho Ye all have really help me a lot I rang cancer support this morn for a chat and I got a GP appointment for Wednesday I have a really bad cough didn’t realise to keep a check on it only for ye Thank you Thank you all I’m going to pull myself together as Tea for Two said create good memories I’m going to stop being house bound afraid to talk to people in case I start crying I’m so daft aggggg Keep well hugs  

I do think that if you share it with close friends and family it helps them to support you instead of going round putting on a brave face when you are suffering inside. I have found sharing it with a few people has really helped them to support me. X

Hello everyone I just thought I would say hello to you all.  I am also in the same position as you. If you want to read my profile feel free.

What we are all feeling is perfectly normal and it is ok not to be ok.  I am now 10months on from my diagnosis. It is still hard but does get easier once you have your appointments and scans at a routine.  I still get Scanxiety again this is normal.  I have just had bone scan results which showed stable and am waiting on CT Pet scan results which should be ready for 18 Feb.

I tried counselling which really was not for me.  There is a group just been set up near (10miles)me for monthly meetings with all people in our situation so you really are talking to people who know what you are going through.  This is meant to be to have a laugh and a natter and share stories not to be downbeat at all and I think this is going to be FAB.

I hope you are ok - we cant take it away but learn to live for today.  I won't let this illness define who I am and want to keep positive for as long as I can.

Much love to you all

I am Lyn

Hi  Iam Lyn

im on the same treatment as you this is my 5th or 6th month to be honest I can never think straight anymore  I’ve only had 1 scan showed liver stable no growth in pelvic or ribs they weren’t sure about my spine as had extra spots light up it could be calcium Oncolochy said hopefully that’s allOMG my legs are painfull as well only when I tried to go walking tho or go up stairs How do find the bone infusion does it make you ill  I don’t have any side effects from the tablets but make sure you take them with a meal or food it’s does stop you feeling sick I read that somewhere I didn’t think councelling was for me either but I might try the group meeting again just to get out of the house Keep in touch Lyn I’m so glad to hear from ye all I’m not on my own lonely now look after yourself 

Angle1111

I know your right I wish I’d bloody stop worrying about  everyone else being upset and be a bit more open hopefully in time I will Thank you OMG it’s snowing here looks lovely like an Xmas card I stood outside earlier couldn’t believe the size of the snowflakes they were huge I love snow pity I can’t post a pic