Hi, I'm new on here, I'm so glad this forum exists, I've been reading people's posts and it's helped already, thank you :)
I had my routine NHS mammogram last week and a few days later was asked to attend a breast assessment clinic yesterday.
It all felt a bit strange so I wanted to write about it.
When I arrived at the clinic, I was taken into a room for about 1 minute and told by a nurse that the reason I have been asked to attend is that they couldn't give me the mammogram result as they saw something in my left breast and needed to do more tests. So I would be having a mammogram then maybe an ultrasound and biopsy depending on what they found.
I was asked if I had any questions but I said no. They didnt take a history or ask about any symptoms and I didn't say anything as I thought that would happen later.
Then I was called in for a mammogram. The person said they were going to do my left breast but positioned my right breast on the machine so I said should it be the left breast and they said that it was my left breast but I said the other one was my left breast. So it felt a bit funny but they did then do the left breast and asked me to wait outside for the ultrasound. They said there were 2 people before me.
I sat in the waiting room for just over an hour. Staff were walking up and down, patients were going in and out of rooms but no-one said anything to me. I know they were busy as there were about 5 patients that afternoon and I was grateful they were seeing me but it felt like a long time and I felt quite anxious and alone.
Then I was called in to a room for the ultrasound. There was one very caring HCA who chatted with me while we waited for the doctor. She was the first person to really speak to me and smile. The doctor came in and showed me the mammogram result briefly and explained that why I had been recalled. It showed a very bright star/irregularly shaped mass.
She did the ultrasound and asked me if I wanted to see it, it was a dark mass.
Then she asked me to feel it in my breast and it was a hard lump. I asked if it could be a cyst and she said no.
She said she needed to take 3 biopsies so that was done, then she left the room. The very nice HCA stayed with me, put the dressing on etc and asked me to wait outside again.
Then after about half an hour, a nurse called me into a room, a bit abrupt. She told me about the wound care, said as the lump was suspicious she would need to refer me to a hospital for follow up and asked me which one I wanted to go to.
I chose which one then I asked her why was it worrying, how big was it etc. She said 16mm and it was worrying because of the shape etc.
Then she checked a few details on my form and said to call if I had any problems with the biopsy site etc.
Then I left.
So while I was there for over 2 hours, no-one really spoke with me to ask if I was okay apart from the lovely HCA right at the end of the afternoon. I did see staff speaking with other patients, asking them if they wanted a cup pf tea etc as it was a small waiting room with a maximum of 10 people in it including peoples relatives who had accompanied them.
I wasn't asked about symptoms etc and no-one was caring towards me but maybe that will be done at the hospital appointment.
No-one explained what it could be etc and maybe I should have asked.
So I came home feeling very lost, it was all a blur and maybe I should have asked more. I am grateful they did all the tests so quickly but I felt a bit uncared for.
So I'm just reading about what it could be and waiting for my hospital appointment which luckily came through today, for 24 June.
Sorry for my long post, I just wanted to explain how I felt as I went in there expecting just a repeat test and maybe the all clear and it ended up being scary and unexplained.
Thank you for listening x
Hi Missp6,
I sorry you had such a negative experience. It's a scary time without feeling uncared for and unsupported.
I'm glad you had some comfort and caring from the HCA lady.
Maybe at your next appointment take someone with you for support and to ask questions which you might feel unable to do so at the time.
I wish you well for your next appointments and hope the experience is more positive for you.
Please use forum for support also the macmillan nurses and cancer care.
Sending hugs , please keep us updated on your treatment plan and recovery xx
Hi Missp6
I am so sorry to hear about your experience, I don't know if there's a way but it would be really good to give feedback to the clinic so that other people don't experience the same.
When I went in I saw the consultant first who had a cancer nurse with him, he was quite reassuring sent me for a mammogram and ultrasound/biopsies and then saw me again. I had to go on my own due to covid but I didn't have the uncared for experience you had.
Unfortunately the after care probably was quite different, I'm now at my 5 year point. All good so far but I get an annual mammogram, in and out and then a letter in the post. I haven't seen a consultant since my operation. Saying that I have rung the Breast Cancer Nurses on a few occasions and they have been fantastic.
Whilst my experience was different I did come away the same as you, lost, confused and lots of questions that I could have asked although I don't know whether I didn't ask some as I was hoping it would go away.
I'm sure your next appointment will be a lot more supportive and hope it goes ok. This group is amazing for the understanding and support provided by others. Let us know how your appointment goes. Big hugs
Thank you Missymolly, yes she was so nice and we had a nice normal chat about work. Maybe I should have chatted more with the other staff. That's a good idea, I'll take my Mum with me next time, take care and thanks again for replying x
Thank you Cazh24 :) I'm glad you're well and at the 5 year point, also still helping people on here. Yes that's how I feel, that it will just go away and I'll be the lucky one with something else. It must feel odd not seeing a consultant again after your op, that's a surprise but I have heard the breast cancer nurses are lovely and caring. Thank you again, I'm feeling a bit better today and I'm glad I reached out, I'll keep an eye on here every time I'm feeling overwhelmed x
Hi MissP6
Sorry to hear about your experience. It sounds like the staff were not very caring at all and it must have unsettled you especially being there on your own.
I found a lump and had to go to a breast clinic just like you did and they did mammograms and ultrasound and 3 biopsies.
They called me into a room at the end of all this and told me the biopsy results would be back within a week and made another appointment. They also told me it was very likely to be cancer and that I needed to prepare myself. They were very nice and caring though.
I have heard that hard lumps are not cysts but there are alsorts of things that it could be...benign tumor etc.
If they haven't pre warned you then hopefully it's nothing.
I really hope you get some good news.
Let us know. Xx
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