Hi everyone. New here.
Er+ 6/8 Pr+ 8/8 HERS2 neg grade 2 lobular carcinoma 22mm. 50 yes old.
Feels like a strange way to introduce myself!
Just recovering from therapeutic mammoplasty surgery, but I've been struggling with sleep this week due to menopause palpitations in the early morning returning to worse than before I went on HRT.
My GP has been awful. Promising to be there and cancelling appointments, telling me to make one this week only to find she is off for a month. Ive other health complications too... Just discovered I've IBS and diabetes all in the last 2 months. It's so bloody complicated and I feel like shit.
Asked to see another GP instead and the best they can do is the 29th December. Its like they really don't care at all.
Come on here to see if anyone has advice about coming off HRT and non - HRT alternatives to find I'm looking at hormone treatment that will make it so much worse.
Did anyone get any menopause help from their Breast care team? Is there anything that helps?
I really don't want to give up my career, it's only just taken off and I've worked so hard for it, but no sleep and random anxiety is vicious. I'm dreading my next appointment on the 18 Dec now.
No worries - my representation of my husband didn't quite come out right, he's not amused with the surgery and wants to be there with me!
God knows what I would have to do without him!!
You represented him as a caring supportive husband - mine would be the same!
Ninsim ️
Just catching up with this thread. I'm totally with you.
I have a confession... I still haven't stopped my hrt. They haven't offered me an alternative yet, though it was my 1st question and they said they would go through that with me. Although I've been diagnosed ER+ and non invasive, they did an mri on both breasts following the mammogram, ultrasound and core biopsies to see if rest OK. Mri came back with other abnormalities. So today was more ultrasounds, more core biopsies and a vac biopsy.
Follow up with results on 2nd January - Happy New Year! So no plan yet and I can't bear to think of me going back to what I was before my hrt. So reluctant to stop. No one has asked about it, so I haven't said anthing. I know it sounds petty in context of cancer. But I don't want to just survive I want to actually live my life. So I totally get where you're coming from. Sorry I can't give you any advice, just empathy. Xxx
Over the duration of today, I've gone from being helpless and angry; to much better informed!!
https://thedrlouisenewsonpodcast.podbean.com/
Have a look at this - looks like you may have made a decision that actually had increased your long term prospects!!
Much respect.
I feel pretty gaslit by the nursing staff. Like I'm making a mountain out of a molehill. There's literally only sleeping tablets recommended. It makes me get so angry!
I dont know - its a bit of an impossible minefield to navigate
Ninsim ️
Coil coming out Thursday. Have been gearing myself up to stop the gel when that happens. I'm thinking is this like an addiction? I REALLY don't want to give it up. I was even nervous confessing here. Felt I was belittling cancer and folk wud think I'm crazy. But seriously don't want to go back to anxiety, depression, exhaustion and bleeding every day. Going to read the link murraymint25 put in.
Thank you fir that link. Because I am er+ I thought I had to give up the hrt as it was feeding the cancer. But I will speak to the nurse about it on Monday by phone. That article was reassuring that my feelings are valid if that makes sense. I may not have been much help to you, but you have helped me...thank you
My first one after 13 years was comedy. My 13 yr old was laughing because I didn't have a clue what to do and I thought it was so gross!! She was giving me pads!
Hi murraymint
Can I ask how long you were on hrt before your BC diagnosis and what age you are.
I started HRT in Jan 22 and diagnosed BC in Oct 22. My husband asked the consultant how long he thought I had BC for. His answer was probably around 6 months.
I then asked did he think the HRt had caused the cancer. He said he couldnt say yes or no.
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