Newly diagnosed dcis

Thanks Karen. Hopefully the MRI will be useful. My appointment is tomorrow, strange to be going on a Sunday! Although I'm sure my car can get to the hospital on autopilot already!

DaisyB when I initially found the lump I went under nhs. But when the surgeon examined me and highlighted his areas of concern I ended up using the private health care we have through my husbands work as it was going to take at least 2 weeks for mammogram/ultrasound alone. I am not known for my patience lol.

I am just feeling so lost today. Thank you for your kind words 

I don't blame you, if you have private health care in place you might as well use it! 

I'm sure you'll have a good day again soon, the ups and downs are exhausting aren't they? xx

It’s the emotional rollercoaster. I made the mistake of having a drink with the hubby last night and told someone who I wouldn’t have ordinarily speak to about such personal things. This is not helping today. So I’m going to take a break from alcohol for my mental health. 
The main issue with the insurance was finding out if they would pay for the other mastectomy as there’s no disease in it but the surgeon has to operate on it anyway to make them symmetrical so recommended the risk reducing mastectomy on that side. From the sounds of it I think they will cover it. Thank goodness. 
How have you been feeling? The baby has started rolling over so she’s rolling from one side of the room to the other. The trouble making begins

Hi everyone,

How are we all doing? I've not been on here in a while, I found a fb group for ladies with DCIS and I've been on there asking a few questions. But I wanted to come back and see how everyone was doing. I also thought I'd do an update as I know in the future people may find this thread and want to know how things worked out for everyone!

Unfortunately my MRI news was not the best, although the MRI itself was lovely! I was so comfy lying there with my boob holes and head in the ring cushion thing, if it wasn't so noisy I could have slept! 

However, the results weren't so fun. They have found more extensive changes than showed on the ultrasounds and mammograms. They think it's at least 7cm and over more of my breast than previously thought. They also are a little concerned some of those changes are looking higher possibility of being invasive. It's also picked up some changes in my lymph nodes and also something in the other breast (although they are fairly certain it's a cyst)

Therefore on Monday I'm back for more ultrasounds on all those areas, and a high likeliness of multiple biopsies!

It's also looking a lot like it'll be a mastectomy now.

This thing just keeps surprising me at every turn. But Im rolling with the punches and feeling quite calm. I went to see a drag act last night which was hilarious, we compared boobs, she just uses rolled up socks and they looked pretty fabulous to be fair!

Rolled up socks would be a lot safer lol.  Sorry to hear about your news. It’s amazing how we can take all this information in and go with the flow. This stage is not very nice, it’s the waiting around for biopsies and results which seem very time consuming when all you want is to get rid of it. Keep us updated, sending virtual hugs, Andrea xx

Hi DaisyB good to hear your update. I was also going to do an update, I just hadn't got round to it so your post prompted me...

I've just had my second WLE this week as my original 2 X DCIS areas (6mm and 8mm) turned out to be much bigger (very common apparently) where he didn't get clear margins on 3 edges. He's taken another 'golf ball' lump and still managed to move around alot of breast tissue - which shows just how dense the tissue is, and also problematic!

My results are in another week. There is still an option to do a 3rd WLE if there is still one more edge to get clear, but like you, it's persistence most likely indicates a bigger DCIS problem where a mastectomy would be a next discussion. However, first things first. 

I'm feeling fairly bright about things (apart from the eve of the second surgery (pre anaesthetic stress)). 

Hi DaisyB

I have been scheduled for my double mastectomy on Wednesday. I’m very nervous but I’m glad as I just want it done now. I hope your ultrasounds go well and they don’t do too many biopsies. I also hope you get the answers you need and a treatment plan asap.

Buzzz I’m glad you’ve had the next step over and done with. I hope this is your last surgery. All being well.

Helen

Buzzz wow what a lot you've been through already. So how long has it been between your two surgeries then? Is it the same operation again? My BCN made it sound to me that if they don't get clear margins on the first WLE then the second WLE is more of a quick in and out.... I'm not convinced! They seem to downplay a lot of the expectations with things, probably to make us not worry!

The anaesthesia is the thing I'm actually most worried about right now, I am very lucky in that I've never had any medical procedures. Past having my kids I have never been to a hospital! So it's all a bit daunting as I just don't know what to expect or how I'll feel xx

MamaH I'm glad you've not had too long to wait. I know it's a long recovery ahead, especially with your little on to look after as well. I really hope the op goes well and you have loads of support lined up to help you in the coming week. I'll be thinking of you on Wednesday. Xxxx