Temozolomide chemo -any experiences?

  • 11 replies
  • 35 subscribers
  • 2831 views

Hi all 

I was diagnosed as having a primary brain tumour back in November  and after my biopsy, it was confirmed my tumour was a grade 2 Astro diffused glioma.  Therefore it could not be removed. 

I have had 40 sessions of proton beam radiotherapy at the Rutherford Center in Reading, which finished on the 14th April. Overall it went really well and for the first 3 weeks I could still get out for runs and was feeling pretty great unfortunately I then caught Covid!!! Luckily I was still able to have my treatment but the two combined knocked me for 6 and I am only really getting my energy levels back now. I have recently started exercise again which I find helps me just as much mentally as physically.

But now for the next stage which is 12 cycles of temozolomide chemo 5 days on 21 off.

Does anyone have any experience of how this chemo is tolerated? Everything I read varies from its fine to its worst thing ever Weary I know we are all different but any advice/ real experiences would be appreciated 

Thanks

Kerry