Recent Diagnosis, upcoming surgery.

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Hi Everyone,

I am new here and have  recently been diagnosed with bowel/colorectal cancer.  I am considering myself very lucky that my cancer has not spread and they are aiming for a cure.  My surgery is this coming Friday and whilst I’ve been handing the news pretty well up to this point my anxiety is certainly creeping up now.n Everything has happened really quickly and I’ve not really stopped to process it all yet. 

The care I’ve received so far has been incredible but I’m not sure what to expect post surgery.  I’ve been told I’ll be on HDU for a few days but not what kind of pain I should expect to experience.  I would really appreciate it if someone could share their post op experience.  My surgeon is hoping to carry out the operation keyhole and reattach everything but has obviously warned me that if he is not happy then I’ll need either a temporary stoma or permanent colostomy which I totally understand.  I am struggling to get my head around the fact I won’t know what I’ll have until I wake up. 

I’ve also been told that I may need a course of chemotherapy post surgery to help reduce the risk of the cancer returning.

Anyway, I’m very grateful for this space and being able to get my concerns and worries off my chest.  Thank you everyone. 

  • I absolutely refused to inject myself daily - with the blood thinners (for 30 days.) Just couldn't!

    Fortunately, the hospital arranged for district nurses to visit me every day to administer them - which they did. I must have seen about 20 of them during that period - so my local region (West Dorset,) certainly wasn't short of them back then. & though a wimp, I certainly didn't feel guilty for their 5 min. visit.

    If you can't bear the thought - just ask!

    Best, Marianne

  • Craig Really dont worry about the anti blood clotting injections.they are quite easy to do.and if you set a time each day soon over and done with .

    All the best and do let us know how it all goes

    Kath

  • Yes, not worth worrying about. Being Type 1 diabetic for the past 60 years and doing four insulin injections a day I found the blood thinner (twice each day for a month in my case) to be more a matter of running out of space to perform the injection, made more difficult by having two stomas. A small price to pay in the circumstances.

    Dulac

  • Our son has a metabolic disease and has injected himself since he was 10.(now 39)it just becomes part of day to day life doesnt it

    Kath

  • Hi Craig

    Yes, I totally agree with what others have said re. Blood thinning jabs....they really are a doddle, & cause no pain whatsoever. I'm afraid I just couldn't administer them myself.....x

  • It does - much the same as brushing your teeth!

    Dulac

  • hi does everybody get drug thinners to take home after surgery for bowel cancer im due to have an operation in january 2024 and have been told i will be having a stoma bag fitted which terrifies me 

  • Hi Stwhitm,

    Thanks so much for the message.  I love the fact you could see Anfield from your hospital bed and more importantly are back enjoying your football.  I’m a Mansfield Town supporter and we’re having a pretty good season so far and it’s certainly a motivation to recover properly and get back to Field Mill and hopefully see us get promotion.

    My main motivation is my 11 year old daughter who has been absolutely brilliant in dealing with the news.  If all goes well I will be home for Christmas.  It’s the uncertainty that’s driving me around the twist at the moment.  The sooner Friday comes around the better, 

    I look forward to coming through my surgery, resting and recovering and sharing my own experience in the hope of helping others.  

  • Hi Marianne,

    I’ll certainly be asking about the blood thinner injections, like you I’ll be quite happy to let someone else do it but think I’ll struggle to do it myself. Thanks for the advice. 

  • Hi Dulac,

    Thanks for the reassurance about the blood thinners.  I suppose once I get used to it I’ll be fine.