Struggling today

Fingers crossed really  can't carry on  like this x

Hi All, thought I’d give you an update, I got my histology results today an I’m T3N0M0 so will need chemo, my oncologist appointment is on the 14th Dec then I’ll be given the plan and when I’m starting, the nurse mentioned 3 to 6 months but Im hoping it’s only 3 but we will see 

Hope everyone else is ok x 

Hi Seashelley, glad you have your  results  even though  it may not be what you wanted to hear but hopefully  3 months will see you right. I have everything  crossed for you. My results  have been delayed  so won't  get  them until next week so just waiting again  and hoping for the best. The good news is that I have new stoma bags and they are much better  so I'm feeling  a little  more confident now. Thank you for updating us, take care, xx

Hi Chelmarsh, so glad to hear you are feeling more confident with your new stoma :-) 

I wish you all the luck with your results and I’ll keep you posted on how I get on 

Take care xx 

Chelmarsh 

Sorry your results are delayed, but really pleased you e got your bags sorted and there’s a big improvement. Confidence comes with that too. Maybe a coffee out or a little shopping. It’s surprising how things improve when you’re able to do more.

Hi Chelmarsh

I too know how awful it is waiting for results, it takes over ones life and I even dreamt about it.  Fingers crossed and hugs for good results.

Hi so sorry not to reply only jost seen this thread, well all went well post op ( i’m day 19 today) 

Jad results and tumour was t3 no lymph nodes out of 19 abs good margins however states there was a few cells in a bit of fat or something in abdomen and due to this need chemotherapy, have been referred and waiting for appoint.

he said it was better results than he thought as my abdomen looked messy ; probs remaining sepsis from

appendix operation  in May) 

recovering well and people are saying how healthy i look, i have lost over a stone since leaving hospital bit that’s not a big issue as overweight anyhow. 

Drove automatic car today for first time as when i saw consultant last week he was amazed at how mobile i was getting up from

chair etc and said after a week i should be ok( haven't told my husband as he wants me to wait another week) but it was great to be out independently.

fearimg the chemo bit it has to be done 

thanks for asking 

linda 

Hi Linda 

Sounds like you are recovering well :-) I’m day 22 and still not sleeping well as I can’t lay on my sides still, I couldn’t think of driving yet, you must be so happy on your recovery 

I am the same T3N0M0 so need to start chemo as well, they mentioned there was some cancer cells in the nerve on wall of bowel 

I have my appointment on the 14th Dec so will find out what kind of chemo I’m having and the start date, tad nervous but we’ve got to do what we’ve got to do  

They are doing the MSI test to see if I need to go to Guys hospital for genetic testing and have recommended my 3 adult children get colonoscopy’s done, I’ll speak to them after the MSI results / New Year. 

I hope you get your appointment soon and everything goes well for you x 

Hi Seashelley L16 Chelmarsh

wow so I think we all ended up with T3N0M0. But we each seem to have had little invasions to either nerve, vascular or fatty cells. Amazing how we can all be so similar and yet slightly different 

Chelmarsh so glad you are getting onto of stoma bags I’m sure that will made all the difference. I’ve lost track of days post op but think I’m day 38 

thankfully sounds like none of us will have to have oxiplatin as it’s not usually recommended for stage 2 ( which it sounds like we all are) as the risks outweigh benefits 

Hopefully you will all get capecitabine tabs to take at home for 24weeks and avoid too many hospital visits. ( my pharmacist hat on here)

 As you all know I couldn’t tolerate them orally so then option B for me is 30weeks of Weekly I/V 5FU and LV which I start on Monday  6th dec 

I’m not aware of a 12week program for stage 2 but will be very interested to hear if there is such a regimen 

upwards and upwards to us all 

Sue :) 

Hi Sue I have been looking into the different types of chemo and was baffled by it all, I was told I was stage  2 so I’m hoping like you say I get offered the tablets, but I’ll find out on the 14th 

Good luck for Monday I hope you are ok 

Here’s to getting this job done  

xx