Hi
just wondering I’m two years after my resection operation, I had stage 3 with 8 lymph nodes affected then had chemo a few months later . I thought(my memory is not what it used to be 
) was told that within a year I would have a colonoscopy and then another in three years 
I was told I was down for a colonoscopy a year last April and told again I was down for one last October but still haven’t had one . I’m not particularly looking forward to having one but just concerned that I should, my markers etc are all stable . Is this something that everybody else has experienced??
also I am getting on with my life I still have lethargy and although I try to not think about having cancer again , I find myself subconsciously worrying and constantly checking my poop I don’t know how I would know whether anything is out of the ordinary because my poop is totally erratic anyway I sorry if I sound whiny because I should be grateful that all is ok That was just something I had to say , it’s hard to explain to anybody else!
Thanks anyway , if anybody can help me with first part I would be grateful 
Hi Rita
I had xelox, Oxaliplatin and capecitabine I had it my hands too but it did stop after I finished the treatment, for me it’s chemo brain fog which doesn’t help when you’re getting older and you’re menopausal, not remembering what things are called forgetting what I’m doing , lethargy that’s the worse for me I’ve had to cut down work to two days as it wipes me out , it’s exacerbated other things as we which will make me sound whiney , it’s very weird as now all that happened feels like a blur and I was so positive and upbeat all through op and treatment maybe too much so because it was easier to do that because everybody around was less worried because covid restrictions were still there but lifting slightly , but as time is going on I feel I suppose a bit down my motivation to do things I used to love is very low mostly because I feel to tired!
I feel aged physically about 10 years !
now I’ve really whinged !!! It all seems petty now everybody else seems to be in a worse situation than me but saying that it feels easier to blurt it out here than at home or to friends as it feels a long time to be still feeling how I feel
thank you Rita
please let me know how you get on I hope there is some solution to be found to give you any kind of relief
karen x
Wow way to go you!!! A skydive!! how amazing are you !!! I am in awe , it’s something I would love to do but am too afraid 
in respect of everything else ! How shocking that you are being 
(this is the nicest way I can put it ) overlooked !! It makes me so angry for you !! I’m glad you have a specialist nurse that cares !
you sound positive and are amazing keep that up !!
take care
Karen x
I’m glad you’re going to see the doctor , take somebody with you and don’t let them fob you off !! If they can’t help they must know how to get you help to at least manage what you’re going through !
I don’t mean to worry and it doesn’t feel a conscious thought just one that’s there in the back of my mind
thank you for for saying that though , hope you can get some rest tonight
take care
karen x
Hi Maria D
I acknowledge you say your situation isn't pain but more sensation based, but I was wondering if you had read the NICE guidelines on neuropathic pain treatments, as it covers damage and sensation too.
Maybe your GP could help review the different treatment options with you to see if prescribing any of them could help?
