What were your symptoms prior to diagnosis of bowel cancer?

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Having read a post earlier, I thought it might be an interesting idea to collect & amass everyone's symptoms of bowel cancer, prior to their diagnosis. It seems to me, (when reading here,) that symptoms vary such a lot, particularly in regard to the specific site in the bowel. I am not sure whether this post has any purpose, but, it might be interesting for someone to collect all the data of personal experiences; yet also, reactions of GPs - when you first presented with symptoms. Yet also, it might help those that might be worrying about the possibility of whether they have bowel cancer.

& so, I'll start with mine:

My symptoms started in summer of 2018. At first, they were very vague - just a dull ache in a certain place in my lower left abdomen. At this stage, it was bothersome, but not enough for me to visit my GP. Soon after, I found I needed to dash to the loo with diarrhoea, then I had occasional bad stomach cramps & nausea. I then found I needed to lie down after eating lunch - & had extremely loud gurgling noises in my stomach - & I would massage my stomach, thinking it was just bad wind - & my thoughts were that I had IBS. A good friend asked me if I was losing weight - which I hadn't considered; but yes, I was having to wear a belt to keep up my jeans. Then, checking my weight, it was drastically reducing. The pain in my left side became ever more nagging, & after three visits to the GP, he ordered a Colonoscopy - which diagnosed a 5cm tumour in my descending bowel - which resulted in a left hemicolectomy in May 2019.

I knew that there was something wrong, but I had convinced myself that I had IBS. I never thought about bowel cancer at that time - probably because it was too frightening to consider.

On reflection, I am pleased with how my GP reacted to my symptoms, but that could be because of my age.

Marianne

  • FormerMember
    FormerMember

    Hi Marianne

    I was on methotrexate for arthritis ....had a few tummy problems with methotrexate and pain meds ...nothing to give any concern...GP said nothing to worry about...2017 Routine poo test showed blood in faeces.....colorectal cancer...Dukes A....

    Peter

  • Don't jump to conclusions! But it's good to get things checked out. Hoping that it all goes well for you.

    Many best wishes

    Marianne x

  • Hi Marianne,

    No real digestive problems but was getting some pink staining on loo paper and occasional mucous in poo. The GP thought it was a little pile as the last 2 screening FIT were negative. Pink staining moved to occasional blood and more mucous more frequently and I went to see the GP again.  She ordered another FIT and this time it came back positive. During Colonoscopy removed small rectal sessile polyp which proved cancerous. Staging investigations revealed no issue with the rectal polyp but highly suspicious lung lesion. So without the positive FIT it’s very possible the the lung cancer would have considerably shortened my life.

  • What did you find out? 

  • Hi  and welcome to the board. This is quite an old post. I’ve tagged  but I don’t know if they’re still looking at the board. Please feel free to start a post of your own by clicking on the Create new Post on the top right if you’ve any concerns?

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    Karen x

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  • Ves very similar to me jools63.

    I had no blood no nausea.

    When I did have pain my lower right I was told it was a UT I  x 1  or kidney issues  x2  I really thought my employer would think I'm a sick note job.

    I like my fluids if I have wine I have water mixed I know I'm odd.

    Prior  bowel cancer I ran didn't smoke moderate drinker not on a school night. Food intake  healthy,

    I believe stress was my main factor 

    My Dr finally said lets do a Poo test 2 days later he called me and said he would fast track a referral f there was blood in my  poon so refrerral  endoscopy and so forth 

    X

  • They are some effects like needing toilet very time eaten and drink and I was losing wight and bad stoumch for while xxx

  • Hi, thanks for checking in. I had an endoscopy + colonoscopy. Two large colon polyps were removed. Test results showed benign. I'm still having gastrointestinal symptoms, am hoping to heal my bowel and continue with preventative measures. If anything concerning develops, I'll be sure to share. Thank you. Good luck out there!! 

  • I had IBS for years, at least that's what I thought it was. Diarrhoea every so often, would just take a couple of loperamide and that would fix it. May 2023, age 83, one episode of blood in poo, no weight loss or pain. My aunt had bc and I'd always dreaded it. Convinced myself no need to go to Dr unless it happened again. July I had a lot of diarrhoea, plus more than usually tired, and breathless when I got to the top of the stairs. Also could feel my pulse beating in my ear. All these are symptoms of anaemia. Went to dr, was told to get myself to Ambulatory Assessment Unit in hospital right away.

    After iron infusions for anaemia, colonoscopy showed cancer and I had a right hemicolectomy in early October. 3.5 cm tumour on my caecum, they said it will have been there for years. These caecal.cancers don't produce any symptoms till they are well advanced, worse luck! 

    So yes, it's easily confused with IBS and quite likely anaemia may be the first thing to show up.

    good luck to everyone on here.

    Karen.

  • Hi

    Went to doctor with bad shoulder expecting to get a few pain killers or anti inflammatories. As it was upper left body and I am 50 he did a spectrum of tests to basicallycheck everything; blood test, ECG, chest x-ray as well as an appointment with physio. He called me the Friday of that week told me I was chronic anemic and get myself to A&E as he wanted urgent CT scan. A&E did all the same tests and sent me home; I got the feeling they felt GP was overreacting. GP insisted on a CT scan and stool test then called again (on another Friday) and wanted me to go see him straight away.  That was never going to be good news and he told me CT scan had found the bowel cancer.

    With hind sight I used to get tired and breathless which I put down to getting older and getting less exercise. 

    So I was extremely lucky I got a bad shoulder and a very thorough gp. Missed and/or ignored the signs of chronic anemia and blood in poo.  No specific bowel symptoms. Very lucky that it was found early. I'm never going to win the lottery now having used up all that luck!