Stage 4 ! The unexpected hits you between the eyes!

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Think everyone here can associate with the overwhelming emotions that come with a cancer diagnosis in a family . The pace of change is fast  and in a stage four setting each procedure and consultation just kept getting worse and putting distance between the safety of the life that used to be and the one that was emerging and in the early days I kept wondering how on Earth did she end up here , going from being asymptomatic to taking part in the newly rolled out bowel screening program and ending up inoperable only a few weeks later ! 
I think we all stopped looking for a cure and focused on living from scan to scan . Over 35 scans later a deep appreciation for the way they have  contributed to my mum’s survival surfaced . She carved out a good life for herself but thought it would always be part of her life !

I am cleaning out her attic as it will come as no surprise that she is frequently found dangling from unsafe ladders despite neuropathy and we need to act! A proper staircase needs to go in ! 
The hospital consultant rang whilst I was up there and what a surprise! They congratulated her for reaching five years without a further recurrence. Twelve years of surviving stage 4 cancer and all she has endured . They don’t  expect to see further disease , don’t need to scan and could be discharged but they will phone her in a year to check up on her as she is not quite ready to cut all ties ! 
They consider her “ cured” ! Well done mum and many , many thanks to her wonderful team ! We shall in a strange way miss you all !

Hope it brings a little encouragement to those going through the very difficult period of being diagnosed!

Take care ,

Court 

  • Thank you . getting there. You and your mum are an inspiration.

    Onwards and flatwards (don't do hills) and keep walking if you can!

  • Many thanks  I have posted on your thread !

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  • Love your superpower line !  you spread a lot of hope and insight yourself ! 

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  • I have had a look online at the Cetuximab rash . It does look uncomfortable. 

    Hope the Folfox and Avistan do a good job for you . 
    A few people just starting out on Folfox . I often wonder if we should have threads on each chemo to allow people to gather information !

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  • Hi Court, Congratulations, but I am confused. Did the metastasis and tumour/s shrink? How can you go from Stage4 to NED 15 years? It's something I am aiming for. Well done!!

  • Hi 

    Yes, she responded so well to chemo that they were no longer visible on the post chemo scan and this made her a candidate for surgery ! Not that it was a straightforward road because she also immediately recurred ! Back to chemo and they shrank again and a more extensive resection on the liver was carried out at a centre of clinical excellence. Several years down the road a small lung met popped up but for the first time was operable so she had surgery only . Nothing else has arrived in the last five years so classed as clinically cured ! Not exactly a direct route but she got there .

    I wish you ever success in your treatment !

    Court 

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  • Ps  if you click on my user name I have kept her timeline of treatment broadly updated . 

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