Little update

FormerMember
FormerMember
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Just thought I'd share how things were going with my partner. He has stage 4 cancer with spread to the peritoneal area. Hes not a candidate for surgery and being treated with chemo to keep it as stable as possible. He was on folfox then folfiri both of which he tolerated okayish and had good response to folfiri. But recently switched to xeliri due to him being reluctant to keep having a picc line, the fragmin and the endless appointments. With this you basically have one appointment then left alone for 2 weeks with tablets. Definitely not the easy option we had thought as he only had 4 days of no treatment before it all started up again. He's felt so rough with tiredness and nausea and finally after 4 years of battling the cancer has lost his hair. Today after just 2 cycles of xeliri his oncologist decided to switch back to folfiri  so back to the picc line. At least he tried and she said she has yet to have a patient complete the whole treatment because of the sid effects. Fingers crossed he soon starts to feel better but the oncologist has also warned it might not be the chemo but the progression of disease. So that's where hes at right now. Back to waiting for another treatment plan xx

  • FormerMember
    FormerMember in reply to court

    I still get a full week 'off' between cycles.

    However the week 'off' usually involves blood tests, oncology appointments, scans etc but has so far given my body time to recover. 

    CT scan next week so scanxiety starting. Hopefully the rugby will distract me enough. 

    Have a great weekend everyone. 

    Pete

  • FormerMember
    FormerMember in reply to court

    I still get a full week 'off' between cycles.

    However the week 'off' usually involves blood tests, oncology appointments, scans etc but has so far given my body time to recover. 

    CT scan next week so scanxiety starting. Hopefully the rugby will distract me enough. 

    Have a great weekend everyone. 

    Pete

  • FormerMember
    FormerMember in reply to FormerMember

    I'm glad you are tolerating it well Pete. The hair loss was a bit of a shock to him with how sudden it was. My partner has been through 12 cycles of Folfox and 12 of Folfiri previously and it never hit him like this has. He was warned the symptoms might not be chemo related but might be disease progression and if he continues to feel so rough will be rescanned sooner. Today hes had a better day though. He switched nausea meds and they seem to be doing their job although still has slight colicky pain and a back ache.

    Fingers crossed for you with the scan I hope the chemo has been doing its job x

  • Hi Jane , 

    Has he tried buscopan for his colic type pain . My mum found some relief from it . 

    Glad to hear he is a little better .

    All the best Big Pete with the scans . I will be thinking about you . 

    Hope the Rugby works out too . I will be hearing it around my home too .

    take care ,

    Court 

    Helpline Number 0808 808 0000

  • FormerMember
    FormerMember in reply to court

    No he hasn't Court but I will mention it to him. He is very funny about taking even paracetamol without permission lol. I have a little bit of meds training but he won't take my word for things unless its okayed by someone in a uniform Thinking hes on daily omeprazole which helps slightly. He definitely notices if he misses it

  • FormerMember
    FormerMember in reply to court

    .