Jaw pain shock!

Thanks 

A good list. 

I read that chewing nothing before the first bite helps, but I forgot to do it! I don’t find a small bite really helps although maybe stops you from spitting it out! I even got it from coffee earlier and also slightly when I sneezed.

Is sneezing at bedtime a side effect, it isn’t really a problem, just wondered.

Hi Jopeg.

I used to sneeze quite a lot on the evening of the 1st day or two after transfusion.

Best Wishes

Net77

Hi everyone, 

Sorry to butt inro this thread, but does anyone know how long this effect lasts after the oxalpliatin infusion. It caught me out badly, the first time I tried to eat anything, following my session.

Thanks in advance.

Hi RCFlyer. I seem to remember it only happening for a couple of days and maybe only for the first couple of cycles although I did have a dose reduction after either the 2nd or 3rd cycle which might have helped.

Hopefully someone with more recent experience will be along shortly 

Take care

Karen x

Thank you so much for your response Karen,

I realise it's not always the best thing to do but I've been researching (Googling) the effect, and it seems to commonly be referred to as 'First Bite Syndrome'. Again, it doesn't appear to affect everyone in the same way. Some people report that it fades away within a few days of the first infusion. Others say that it fades between treatments,  but returns following each session, to a lesser extent. For others, it only stops once all the chemotherapy cycles are completed.

We are all different, so it does sound like it’s a case of 'wait and see'. At least I'm prepared for it now :0)

Warmest regards.