Managing a spread to the liver !

Thanks for replying that’s really useful just glad to be getting some treatment at last it seemed to take forever 

Hello!  Yes I was absolutely fine with the first surgery (9 hrs) of bowel and liver tumour removal.  I had no drains/temp soma etc and I had the 6 mnth belts and braces chemo.  But when the tumour returned to the liver 9 mnths later they gave me IV chemo (4 rounds) to shrink it pre/surgery and only afterwards when I was recovering did my cardiologist tell me (and confirmed by my oncologist) the chemo was known to compromise heart capilleries.  This is not of course always the case but from experience the NHS operate on a need to know basis so I would definately make them explain the risks.  All the best

It is terrifying, but try to stay positive, you will both feel so much better after the first one and the fight can begin.  The nurses are brilliant and will look after him, it will soon become routine and much less scary.   The best advice I was given right at the beginning was to get fit and healthy which will aid recovery after each cycle, even a walk is good.  Make sure he drinks plenty of fluids, dehydration can happen easily, not cold drinks as it can affect the throat, room temp squash/water is fine.  Any questions, please ask.  

Thanks again I will keep in touch 

Got some brilliant news this morning. 
After 4 rounds of Capox and 3 scans MRI , CT and PET and an MDT meeting, we have recieved a letter to see a surgeon in Leeds ️

Nervous but all part of the Journey. 
 
This forum has been a godsend these hellish few months so il be paying the positivity forward. 

Hope everyone is doing as well as possible

C

Did you have a line fitted wondering how you found it is it painful being in your arm the whole time 

Excellent news CxO x

Hi Soo7 Hope you don’t mind me replying? A picc line isn’t painful to be honest and so much easier than having them searching for a vein to put a cannula in. I found the oxaliplatin made my arm very sore so the picc line was a godsend. It’s well taped up by the nurses and I also used to wear a piece of stretchy bandage over it. You can’t excessively swing your arm about eg. playing golf or tennis and you can’t get it wet. You should be given a prescription for a limbo arm cover which is a plastic sleeve with a rubber seal at each end which you can pull over the picc line to shower. The nurses will flush it every 7-10 days and will check it’s ok.

Sorry I missed this but delighted for you  and your dad .

It’s a good news story . 

Thankyou it’s all a bit scary at the moment but we need to get on with it