Anyone had peripheral neuropathy that worsen and spread after chemo ended?

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I know peripheral neuropathy is a common side effect of FolFOX. I had a lot of trouble with it during my treatment but it seemed manageable. When treatment ended, it hung around but was initially seeming to improve. A month or so after treatment it started spreading from my toes into my foot. Then it reappeared in my fingers after being completely absent there. 

Now it is up past my knees and has spread through my hands to my wrists. This is very concerning since it impacts my mobility and independence.  Has anyone else had a similar experience? How did it turn out for you? 

  • Thank you for the confirmation. I, too, am surprised my oncologist wasn't familiar with the phenomenon.  The gabapentin seems to have slowed the progression or maybe it just reached it's natural limit but I'm not looking a gift horse in the mouth. Lol