Oxaliplatin IV and capecitabine tablets.

Hi Kell Sug

thanks for the reply, I have 4 cycles of 3 weeks IV infusion on day 1 and tablets on days 1-14. Days 15-21 no tablets and then I start the cycle all over again. 

I hope everything goes well with your husband, my surgery was a success but they had to remove a tumour that had fused onto my small bowel as well as part of my large bowel. If he follows the surgeons advice very closely I’m sure he will have a positive outcome. 

KevinK

Hi Julie

Funny you should mention taking washing out, my washing machine is in the middle of my kitchen waiting on a plumber coming tomorrow. 

The nurse did say that in cold weather it might be an idea to wear gloves. 

The throat spasms are from the oxaliplatin. I’ve been taking 1650mg tablets since the end of May, and not noticed any real side effects. I find the 12 hour gap needed between doses the biggest pain in the backside . I get up before 6 to be able to have a cuppa or two before eating to take the tablets. I didn’t read the leaflet listing the side effects as I thought most of mine were caused by the infusions. Good luck.

Thanks for the reply Jools63

i too usually waken up about 6 and my plan is to eat at 7 morning and evening. No real side effects so far apart from pins n needles in my arm but I have only taken 1 dose of the tablets. 

I eat at 7 and 7 as I find myself getting tired around 8-9 in the evening. Apart from wearing gloves for taking things out of the fridge, I found walking my dogs early in the morning, when it was coer, made my face cramp. Obviously, you don’t have to have dogs to need to be outside early! I did also suffer from a lot of heartburn, so may be keep something in just in case? I hope you don’t suff from too many side effects from your treatment.

I have an auto immune lung disease so my mobility is limited and have a house cat as a pet. Because of the medicine I take for my lungs I have to take omeprazole which reduces heartburn. 

I also experienced this during the infusion of oxaliplatin and it lastest for a couple of days after. The infusion site felt numb yet painful so when I got home, put a heat pad on the area and rubbed volterol on and both these really helped. Also found that when I experienced neuropathy in my feet, moisturiser and volterol also helped. I had 4 rounds of CAPOX between Sept 22 to Dec 22 and although I did still have neuropathy in my feet, did get worse about 4 months post chemo , using this regime did help and the feet are now a lot better, Good luck with the chemo and please ask any questions that spring to mind as someone will also have some great advise based on their personal experience. 

Oh bless you. One less side effect to contend with. I hope the pins and needles is wearing off.

Hi kevin k

I had my first infusion nearly two weeks ago, and yip I also had the pins and needles … for nearly a week!

heat pads are good

i was prescribed 1650 of capecitabine, but had to stop them two days before cycle was over due to the sickness

oncologist said he would look to reduce the dose for the second cycle 

seems like we’re going through the same treatment , I will question the dosage again as yours is lower, I know they go by weight and I’m 9 stone

stick with it, keep the gloves on and keep on smiling  

Hi NickyP I’m around 9 stone and am taking 1650mg capecitabine. It’s weight plus height which is used to calculate dosage. I was told this is my maximum dosage, but can be reduced if I develop severe side effects.