Hi all,
As some of you may know from my other thread, I now have my ileostomy reversal booked in for 9th March – eeeek!
Although I’m keen to have a reversal I’m quite apprehensive now I’ve got a date. I’ve being doing the exercises recommended to help gain bowel control although not as often as suggested by Dr Jervoise Andreyev in the video posted by Kareno62, I need to step these up! I appreciate the immediate time following reversal may well be challenging and I’m hoping I can cope well with this.
I’m looking for any information and advice anyone can give regarding what to expect, I believe I have a reasonable understanding of issues but just wondering if there’s anything I haven’t considered. I have been very lucky in that my ileostomy seems to cope with almost anything I throw at it, although I have stayed away from whole nuts, sweetcorn and mushrooms, but I assume I should revert to a low residue diet again (even though it’s so boring) and introduce other foods gradually?
I’m also concerned regarding possible bowel incontinence (hopefully short term), I’ve looked at products online but faecal incontinence products look rather bulky and seem to be the same product for both male and female, so I can see they’re not very comfy or discreet. I wonder if any ladies out there can advise what they found useful. Are high waist period pants any good or ordinary high waist knickers with a sanitary pad?
Any advice at all about anything gratefully welcomed.
Hope everyone is doing OK and can enjoy the sunshine today – feels like Spring is almost here.
Best Wishes to all
Net77x
Thank you Kath
I was bombarded with science on the net and as my name suggests I find it hard to compute!
i have been called Arty Farty in the past which I wasn’t keen on then but for years I actually haven’t done
It’s something impossible for me to do
Ann
Hello to everyone reading this.
Just thought I'd update you all.
Last Friday to Monday was pretty grim. Lost count of number of times to loo, leakage, soiling, VERY sore bottom! As an aside I damaged my thigh/hip joint by over rotating it, a few days before my operation and have been living on painkillers for that since home. Have been eating very small amounts of food and on a beige diet.
Tuesday didn't open my bowels at all (probably due to meds) and this helped my poor bottom recover
. Since then things regarding my reversal have really improved. I don't have much urgency and seem to have a cluster of 2-4 toilet visits in the evening only! This is so much better than I expected, albeit early days yet.
Today the incontinence pants have gone! I've next to no pain from my wound and it's closing nicely. Just need to get this thigh/hip problems sorted now .
It was absolutely worth doing the sphincter exercises and would recommend persevering with them to anyone having a reversal, even though it's a bit of a chore at the time.
Hope you're enjoying this amazing weather.
Best wishes,
Net
Hi Net77 and it’s good to hear that things sounds to be improving. Codeine is renown for havung a constipation effect so that could be slowing things down a bit. I found haemorrhoid cream to be good for a sore bottom as it has a slightly anaesthetising effect - I remember being close to tears with mine once so using this cream and wet wipes instead of toilet paper really helped
Thanks for the update - Im sure it will be of help to others in the future too
Take care
Karen x
Hi Karen. Thanks.
Yes, I took all your advice re creams, wipes etc. I even found the water wipes were too painful to use initially but luckily we have a douch next to the loo.
How are you doing after your hip op? Hope your recovering well and able to enjoy the lovely weather.
Best Wishes
Net x
Thanks Nett77
Your progress sounds really encouraging.
I hope that things carry on improving with this lovely weather you can go out in the sunshine
When it comes to the sphincter exercises I’m not sure what I’m doing. I’ve read all the literature on it. Im not sure I know where my bottom is anymore. It’s really funny when I think about it. I spent so long with a massive pressure there. It’s now asleep.
I will keep trying to find it though I’m six more months until I’m on the top of the list
Thanks so much for the update
Hope your progress continues
Ann
Hi Net77. I’m improving slowly thanks. Managing on 1 crutch now but operated leg is still pretty swollen. I’ve had to wear those horrible socks for 6 weeks and I’m sure they don’t help. Did a few laps of the patio in the sunshine this morning and gonna ask hubby to set me a chair up outside the summerhouse so I can get some fresh air x
Hi Karen.
Good to hear you're improving and 1 crutch sounds good. Is it compression stocking/socks you have to wear?
The weather looks really good for the next week or so - so get your chair set up outside your summerhouse, little table, sunglasses, sun cream, drinks and a good book!
That's my plan too (except we don't have a summerhouse). Will be thinking of you.
Take Care
Net x
Whatever cancer throws your way, we’re right there with you.
We’re here to provide physical, financial and emotional support.
© Macmillan Cancer Support 2025 © Macmillan Cancer Support, registered charity in England and Wales (261017), Scotland (SC039907) and the Isle of Man (604). Also operating in Northern Ireland. A company limited by guarantee, registered in England and Wales company number 2400969. Isle of Man company number 4694F. Registered office: 3rd Floor, Bronze Building, The Forge, 105 Sumner Street, London, SE1 9HZ. VAT no: 668265007