Process for new bowel cancer diagnosis

FormerMember
FormerMember
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Following completion of a home test kit I was called in for a colonoscopy 9 days ago. During the colonoscopy I was diagnosed with a single malignant tumour. Within 4 days I had CT and MRI scans. All very quick.

Today the ColoRectal unit had their weekly Interdisciplinary meeting to discuss their cases including mine. They said I will hear from them next when they have been able to allocate me to a consultant. I don't have a date for this.

I don't want to be selfish after their very fast response but am in limbo not knowing when someone will contact me again. In your experience did the consultant meeting come quite quickly after your scans?

  • Hi Elaine 

    Thanks for letting us know your news. 
    You must be so relieved now to have a consultation booked, hospital planned and your team sorted.

    Now for the nice part, shopping , big knickers, three nighties, dressing gown and slippers. Jo Malone body lotion is a calming relaxing aroma and skin does dry in hospital. I had Channel 5 too.

    Ann
     ‍Art

  • FormerMember
    FormerMember

    I had a call this morning, my consultant meeting has been brought forward from a call next Tuesday, to being a F2F tomorrow. That's obviously good.

    I received a copy of the referral letter today. It states my 'provisional staging', ie the stage the cancer is at.

    It is T3aN1 M0.

    As far as I can work out, what this appears to mean is:
    # T3. Tumour size 3 on a scale of 1-4. I was slightly surprised it was graded this big but I guess per se it's not the biggest issue. They already said they think it has been there a year, perhaps more.
    # I don't know what 'a' is. With other cancers, 'a' always seems to be better than b+.
    # N1 seems to mean the cancer has spread to the local lymph nodes. They seemed undecided about whether it had at the meeting I had with the Basildon consultant. 1 seems to means a low number of nodes are affected
    # M0 means no metastases.

    Does anyone know if that's right? I'll ask tomorrow anyway...

    Elaine

  • . Yes that’s exactly right and I’m not sure what the ‘a’ bit means either! I’ve attached the Macmillan link about staging. I was same stage as you and had 2 lymph nodes affect. My friend had the same initial staging but was found to have no lymph nodes affected from the histology report. 
    https://www.macmillan.org.uk/cancer-information-and-support/bowel-cancer/staging-and-grading-of-bowel-cancer

    Hope the meeting goes well tomorrow

    Take care

    Karen x

    Macmillan Support Line - 0808 808 00 00, 7 days a week between 8am-8pm
  • FormerMember
    FormerMember in reply to Kareno62

    Thanks Karen, that's really helpful information.

    Elaine

  • Good luck tomorrow 

    Ann
     ‍Art

  • FormerMember
    FormerMember in reply to Artsie

    Thanks Ann, I'll let you know how it goes x