Pre op radiotherapy for low (2cm above anus) T3 N1 M0 Rectal Cancer.

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I am 63 & have recently been diagnosed as above.

At the MDT Meeting the oncologist was unsure whether to recommend short course (1 week) intensive RT with surgery (AP Resection with permenant colostomy) shortly (2w ish) thereafter or long course RT (5w combined with chemo) with surgery 12w after - with rpt scans to latter end of this time to assess efficacy prior to surgery.

He is going to discuss this with his oncology colleagues & I hope to see him in the next week or so to hear their recommendations.

Obviously, I'm likely to go along with their advice, but.I just wondered if anyone had had experience of the short course RT option & indeed if anyone had had experience of the long course combined chemo/RT - both followed by an AP Resection with permenant colostomy?

If you could possibly share any of your experiences, I'd be most grateful.

Many thanks.

  • Davisio 

    Please keep in there.

    I have a permanent ileostomy and had surgery 3.5 months ago it’s been fine and takes a bit of time getting used to it but Stoma nurses are great. 

    I have had a couple of accidents but stay positive keep reminding myself that without the bag I’d would be here so it’s given me a 2nd life - stay strong!!

    Good luck and happy to answer any questions re treatment, surgery or the ileostomy 

  • Can I ask how long  your initial diagnosis (I had an exam before mri, ct, colonoscopy- awaiting another mri tomorrow) before actual treatment. I was seen on 11th June by specialist from having notification from bowel screening they had found something in May. Have an appointment with a Professor on 19th August I assume to advise of next step

  • Pez2

    Your question to me or to Chris?

  • Davisio 

    Please keep in there.

    I have a permanent ileostomy and had surgery 3.5 months ago it’s been fine and takes a bit of time getting used to it but Stoma nurses are great. 

    I have had a couple of accidents but stay positive keep reminding myself that without the bag I’d would be here so it’s given me a 2nd life - stay strong!!

    Good luck and happy to answer any questions re treatment, surgery or the ileostomy 

  • Anyone who can answer please as this seems to be a long wait

  • I was lucky as diagnosis was 22 Feb and surgery 13 April but I wasn’t on NHS tbh 

  • Hi 

    You could give our helpline staff a wee call . 0808 808 0000. They would be happy to chat timescales through with you . 
    My own experience with my mum was there was never any great urgency ! They even told her to go and have a holiday as it had probably been there for years . That is obviously completely different from a patient perspective and certainly at the beginning there is anxiety around timescales . But I am sure the staff could reassure you . Over the summer months things often get delayed a week or two with holidays .

    Hope you are coping ok ! Totally understand your concern 

    Court 

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    Helpline Number 0808 808 0000

  • Many thanks to everyone who has posted to share their experiences...

    Firstly to Pez2-It does seem to be quite a wait for you.....I note that whereas I had an MRI & CT scan in the same afternoon, it looks like they are doing an additional MRI scan on you, which might delay things....maybe there's an NHS postcode variation...in our area we have access to a Colorectal Nursing Service....one of them called me soon after the colonoscopy & they have been in contact since & have said that if my treatment pathway seems sluggish, I can contact them. When you say that you will be seeing a "Professor", it implies you are under a teaching hospital set up & I'm surprised if they don't have the nursing support service we have.

    I've just seen Court's post & contacting the Helpline makes a lot of sense.....also I too was told by the consultant who did the colonoscopy that the cancer had probably been developing for a least a year or two.

  • Many thanks.

    I've looked at the consultant's letter to my GP & that confirms what he told me ie that the biopsy showed an adenocarcinoma. He didn't say that it definitely wasn't a "signet ring varient", so I'm going to contact the Colorectal nurse to ask her to check this out.

    Thanks again.

  • Thank you both for your reply