I was so close to the 5 year all clear - now waiting again

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My history: (I was in this form in 2018 but can't find my log in!)

2018 - Bladder Cancer - 2 x TURBT - multiple tumours removed - one year BCG treatment.

Series of clear cystoscopys for just under 5 years.

Oct 23 - reduced kidney function identified/ultrasound/CT scan - kidney not emptying

Dec 23 - Cystoscopy to investigate blocked ureter tube, couldn't see ureter opening as bladder lining abnormal and thickened - TURBT to remove - awaiting biopsy. (kidney still blocked!) 

So I've spent Christmas with post TURBT discomfort, Dr said high possibility that this is a recurrence, I'm terrified. I know I'll need another anaesthetic soon to sort out further stuff even if just for kidney.

40's Mum of 3, working and just too busy for this :-(

To add to this I had my hip and femur shattered by a horse Dec 2022, 11 days in hospital, all pinned but have non-union (bones not joining back together). Have been in pain and discomfort with this for the past year (next x-ray Feb 24) - I'm just exhausted and don't feel strong enough for cancer again.

  • Hi Garviv, best of luck for your flexi, hoping you get the thumbs up and you can get back to golf and curry.

    Its always an anxious time just before , something i dont think anyone gets used to.

    much love to you Angela 

    Much love Angela x

  • Thanks Angela. If it ever stops raining might get some golf in. Course closed for last 10 days. Garviv

    Garviv

  • Great that the op is very soon. It's the waiting that drags you down. I haven't had a RC (yet) but I did have a hysterectomy when I was in my late 40s. I remember feeling pretty groggy for a couple of days, but we were encouraged to get up and moving asap. The worst bit was trying to have a poo after such a long anaesthetic. Particularly since just as I was about to achieve success the hospital fire alarm went off! Put me off my stroke so to speak. Slight smile You've got a brilliant attitude PurpleSparkle which will carry you through. All fingers are crossed for you. Hx

  • Good luck PurpleSparkle!

    I had this surgery in March 2023.

    Just want to encourage and support you by telling you I’m making excellent progress to date!

    I was also on an enhanced programme!

    I didn’t eat solids before I started to pass wind which is an indication that the bowel has woken up!! 

    I then went on to low residue  foods and drank plenty of water. Also was given daily doses of laxido for bowels which were reluctant to move.

    I was up and walking a few steps the day after my surgery.

    I have found invaluable support from this group and also my local urostomy.group. Your CNS should be able to give you details of your nearest group. Their practical experience is second to none.

    I will all be over soon. Remember to be kind to yourself and take baby steps.

    Looking forward to hearing how your progress goes. ThumbsupPray tone2

    Kiko

  • Thanks Jane, some great tips xx

  • Thanks  , I'm a bit worried about getting constipated Astonished.

  • Thanks  , As you say thankfully not much longer to wait now Pray tone2.

    What bad timing for your No2 in hospital !!Rofl!

  • Thanks  , For the positive feedback, glad to hear you are doing so well.

    Yes I'll remember that - baby steps xx

    C xx

  • Best of luck for Monday xx everyone will be thinking about you xx love Tina 

  • Hi Garviv, hope all goes well today, best of luck. We are thinking about you

    much love Angela 

    Much love Angela x