Bladder cancer diagnosis 1 year in

My brother had multiple low/medium grade tumours over a couple of years or so. Eventually was clear long enough that they discharged him. Sadly, it's the nature of BC.

Hi Miss69

I was diagnosed in Jan 2023 (day after my 61st birthday), had a TURBT in Feb 2023, 2 low grade tumours removed from the right hand side of my bladder

I had a cystoscopy in June 2023 which was clear

Next cystoscopy was March 2024, multiple (more than 10) tumours seen on the roof/dome of my bladder

Another TURBT May 2024

Started 6 weeks chemo June 2024

Booked in for a rigid cystoscopy on the 27th Aug 2024 

Like you I am very concerned that they have come back so soon and I am very anxious about the 27th

Take care

Much Love Tina x

Hi Tina, very best of luck with the rigid cystoscopy. I wish we could all say the magic words to ease the anxiety of not knowing. Everything crossed for you. Take care xx

Yes thats exactly how I’m feeling. It was devastating to hear that first cancer diagnosis but slightly relieved at the same time that it was only 1 tumour. But then 3 months later it might have regrown & then having to wait another 3 months to hear that  I had 9 was overwhelming. I am unfortunately a worrier I can’t help that. And I know that it could be worse as many other have invasive bladder cancer. My family have been very supportive. Work unfortunately are not so. I joined this forum to be able to talk to others in the same position as I tend to keep my real concerns to myself. Another lady said that it’s quite normal to have multiple tumours grow at first, so that’s what I’m less concerned about now. I really hope you get some good news on your next cystoscopy. Miss69 x 

Hi Teasswill. Thank you for replying. I’m glad he’s been discharged now. Take care Miss69 x 

Hi miss69

Try not to worry I got diagnosed in 2021 with  low to high grade and I had 7cm tumour removed 

Then I had a recurrence year half later that was lazored I had chemo flush and have had 2 months check up since 

I totally understand u as it is awful having to worry day in day out if it is going to return 

But please stay positive my lovely I'm sure everything will be fine and that u are getting plenty of support from family and friends 

Much love xxx

Hi Hunni,  thank you so much for your kind words. I cannot believe how lovely everyone has been & I wish I had joined this forum sooner. I hope your checkups are positive one’s moving forward. Love to you too xx 

Hi Miss69,Welcome to our friendly group.I’m glad you are finding it supportive.Love Jane xx

Ahh where all here for support  hun I have been on here for around a year  and am just getting back into tje lovely group anxiety for me stopped me coming on here because I always thought I was winging because there are alot of lovely people on here are very worst  off

So I am back to stay 

And u also stay positive my lovely love to u too xx

Hi Miss69

I had my rigid cystoscopy and biopsies yesterday (27th Aug 2024)

All went well, I had biopsies from both the original tumour sites and extra biopsies in a few areas of concern (not sure what that means)

Very tired and sore today but glad its over

Now the wait for results begins 

Much love Tina x